Online Bioethics Resources

by Pamela M. Gannon

(Posted October 31, 1997 ? Issue 19; archived December 5, 1997)


Thanks to advances in biotechnology and medical research, over the last decade the field of bioethics has emerged into prominence. Recent discoveries in cloning technology have provoked worldwide discussions about bioethics issues. A survey of bioethics Web sites uncovers articles and essays, discussion forums, collections of links, and bibliographies, all available to explore topics in science and research ethics.

Essays and Articles

For a good introduction, visit Bioethics for Beginners, part of the Bioethics Internet Project at the University of Pennsylvania's Center for Bioethics. The introduction describes the origin of the bioethics and medical ethics fields. The history begins with a description of professional codes such as the Greek Hippocratic Oath and progresses to research ethics issues cited in 1966 by Henry Beecher of Harvard University. Further discussion explores topics such as reproductive medicine, the Human Genome Project, and defining death. In addition, the Bioethics Internet Project features an extensive library of articles, written by the Center for Bioethics faculty, addressing a variety of current ethical issues in biology and medicine.

The Ethics in Science site at Virginia Polytechnic Institute presents many essays on science and research ethics. Articles include "Misconduct in Science" by Vincent Hamner and "Ethics in Science" by Henry Bauer. The site provides access to an online version of On Being a Scientist: Responsible Conduct in Research, a landmark publication prepared by the National Academy of Sciences. The Ethics in Science site also contains an extensive bibliography and a useful collection of ethics links, On-Line Science Ethics Resources.

Collections

Biomedical Ethics: Readings on the Internet, maintained by Roger J. Rigterink at the University of Wisconsin, Fond du Lac, is a diverse collection of essays, discussion results and Web resources in a broad range of bioethics topics. Some essays are: "Discovering Knowledge: Issues in Genetic Testing" by Robert Wachbroit, "Restoring the Sanctity of the Patient-Physician Relationship" by Joel R. Cooper, and "Bioethics and Japanese Culture" by Masahira Morioka. An interview with Ian Wilmut, the sheep-cloning Scottish researcher, is presented by Andrew Ross in "Dr. Frankenstein, I Presume?"

The Genetics and Public Issues Web site at the National Center for Genome Resources features a collection of essays entitled Genetic Odyssey: An Exploration of Genetic Topics. Ethical issues are addressed in many of the articles, including cloning ("Dolly and Cloning Living Beings"), genetic privacy, and hemochromatosis.

font SIZE="3">

Several Web sites serve as gateways and collection sites for online bioethics resources. The Genetics and Ethics Web site, compiled by Bryn Williams-Jones at the University of British Columbia, is a well-organized collection of links covering a broad range of topics. The MacLean Center for Clinical Medical Ethics at the University of Chicago contains an extensive number of bioethics links. The Ethics Updates site of Lawrence M. Hinman features resources for ethical theory and applied ethics, including some biology topics. This site also includes a glossary of ethics terms, tables of contents of ethics journals, and is searchable.

Discussions

A variety of excellent Web sites feature discussions of biology and research ethics. The Bioethics Internet Project contains a section entitled Ethics & Genetics: A Global Conversation, which presents articles on different research and medical ethics issues; readers can comment directly and the comments are archived. Current topics include "If Gene Therapy Is the Cure, What Is the Disease?" by Arthur Caplan and "Can Human Genetic Enhancement Be Prohibited?" by William Gardner.

Bioethics Discussion Pages, moderated by Maurice Bernstein at the University of Southern California, is a friendly site inviting debate of topics such as those entitled "Brain Death: Is That Dead Enough?" and "Cloning of Humans: Is It Ethical? Should It be Done?" The site includes polls for visitors to vote on topics and follow trends in opinions. Visitors can also suggest additional subjects for discussion.

font SIZE="3">

Hinman's Ethics Updates site includes a discussion forum for bioethics issues such as The Ethics of Cloning and Artificial Human Reproduction. The site presents current news and background references to educate readers on the topic areas. Visitors can browse discussions as a guest or register for free to participate.

Science magazine's first Web project was an interactive discussion called Science Conduct On-Line. The project presented five case scenarios of different ethics quandaries and invited readers' comments. A panel of experts responded to the discussions. Cases include "Whose Data Are They, Anyway?" And "A Grant Reviewer's Quandary." Although the project is no longer active, it is an excellent resource for thoughts about ethics in research.

Publications

The Scientist publishes many articles and letters exploring bioethics issues. A recent article, "Bioethics Literature Grows as Academic Interest Expands," discusses journals that are devoted to the topic of bioethics. The article includes a linked table of ethics journals, many started in the last ten years. In addition, the American Association for the Advancement of Science Scientific Freedom, Responsibility and Law Program publishes a quarterly newsletter, Professional Ethics Report, that documents research ethics issues.

Databases

Several online databases assist in the retrieval of bioethics references. The National Reference Center for BioEthics Literature (NRCBL) at the Georgetown University Kennedy Institute of Ethics is supported by the National Library of Medicine (NLM) and the National Institutes of Health. The library contains the world's largest collection of biomedical ethics literature. The NRCBL Web site provides extensive bibliographies for basic resources in bioethics, for ethics and human genetics, and for cloning. Links to online resources are provided within the bibliographies, when available. In addition, the NRCBL site describes BIOETHICSLINE, an online bibliographic database available by subscription from the NLM's MEDLARS system.

The Medical College of Wisconsin's Bioethics Database is a gopher-based service that compiles relevant journal articles, news articles, court rulings, and legislative bills. Another resource, the European Database Network, is a collaboration of France, Germany, Sweden and the Netherlands. The project provides information for ethics in medicine, health professions, and health care. Users can search for literature references and obtain copies of the original literature.

Bioethics is defined by Merriam-Webster's Collegiate Dictionary as "a discipline dealing with the ethical implications of biological research and applications especially in medicine." As public interest in bioethics issues expands, the Internet will be an increasingly informative resource for discussions and publications on science and research ethics.

Pamela M. Gannon, Ph.D., is the founder and Webmaster of Cell and Molecular Biology Online.

Send us your comments and ideas for future articles.

Endlinks

Access Excellence: About Biotech: Issues & Ethics - an educational site that discusses some bioethics issues, particularly those related to the Human Genome Project.

Biomedical Ethics - Stockholm's Karolinksa Institute Library's huge collection of links to medical ethics resources.

Several HMS Beagle columns have addressed bioethics issues :

"Science and Ethics of Mammalian Cloning" - HMS Beagle's Cutting Edge Debate, moderated by Jon W. Gordon.

Two humorous approaches to bioethics are the short Biotechnology Code of Ethics and a cartoon (a lengthy download at 678K) from the Women and Genetics in Contemporary Society home page.

Web sites mentioned in this column:


Recent In Situ Articles
Joy of Cooking: Protocols on the Web
by Pamela M. Gannon (Posted October 17, 1997 ? Issue 18)
Lights and Wires in a Box
by Dean Haycock (Posted October 3, 1997 ? Issue 17)
Notice the Library Sprouting on Your Desktop?
by Ellis Rubinstein (Posted September 5, 1997 ? Issue 16)
Bioscience History Alive Online
by Pamela M. Gannon (Posted August 15, 1997 ? Issue 14)
Order Out of Chaos :Organizing Your Internet Searches
by Zev Leifer (Posted July 25, 1997 ? Issue 13)
Pounding the Virtual Pavement
by Pamela M. Gannon (Posted July 11, 1997 ? Issue 12)