Resources and information for parents of children with cancer . . . by parents of children with cancer.

Survivors—follow up clinics 

The following criteria are used to add an institution to the list:

If you know of a clinic that should be included on this list, please e-mail Patty. Last updated January 2007.

Have you or has your child been seen at one of the clinics listed below? If so, you can fill out our patients' survey to rate your clinic.

Canada

AfterCare Clinics

The Pediatric Oncology Group of Ontario's survivors clinics.

Alabama

Taking on Life After Cancer Clinic
Children's Hospital of Alabama

1600 7th Avenue South
ACC 512
Birmingham, Alabama 35233
(205) 939-9285
Nurse Clinician: Jodi Carlee, RN, MSN
Supervising Physician: Kimberly F. Whelan, Md

Sees patients at least two years off treatment. Meets every Friday.

(updated 12/2006)

Arizona

Phoenix Childrens Hospital
Long Term Follow-up Clinic

1919 E. Thomas Road
Phoenix, Arizona 85016
(602) 546-0920
Nurse Coordinators: Britt Olson RN, MSN, CPNP and Kelli Fischbeck RN, BSN
Medical Director: Paul Baranko MD

The clinic meets the first 3 Thursdays each month. Sees patients at least 2 years off therapy or 5 years from diagnosis whichever comes first. Sees all ages, including adults. Provides referrals.

(updated 6/2007)

California

Childrens Hospital Los Angeles
LIFE Program (Long-term Information, Follow-up and Evaluation)

4650 Sunset Blvd. #54
Los Angeles CA 90027

Medical Director: Cecilia Fu, MD
For further information about the program/appointments contact:
Neural Tumors: Kasey Rangan, BSN, MSN, PNP (323) 671-6053
Leukemia/Lymphoma and Bone and Soft Tissue Tumors: Yael Rosenthal, BSN, MSN, PNP (323) 669-4188
Web site: LIFE program at Childrens Hospital, Los Angeles

Sees both child and adult survivors; provides referrals for adults.

(updated 12/06)

City of Hope National Medical Center
Childhood Cancer Survivor Program
Center for Cancer Survivorship
Division of Population Sciences

1500 E. Duarte Rd.
Duarte, CA 91010

Medical Director: Smita Bhatia, MD, MPH,
Clinical Director: Wendy Landier, RN, MSN, CPNP, CPON
Program Physician: Seira Kurian, MD, MS, MPH
Nurse Practitioner: Karla Wilson, RN, MSN, FNP-C, CPON

The clinic meets on Wednesday mornings and Friday afternoons. For further information or to schedule an appointment, call Karla Wilson at 626-256-4673 x63989

(updated 12/2006)

Children's Hospital of Orange County

455 S. Main St.
Orange, CA 92868
(714) 532-8636
Coordinator: Janet Hager RN BSN
Phone: (714) 289-4181
Fax: (714) 532-8699
Medical Director: Lilibeth Torno MD

Our Long Term Follow up clinic meets every Thursday afternoon (except the 5th Thursday of the month). We see patients that are 2 years or more off therapy, until they reach age 21. It is a multidiciplinary clinic with oncology, endocrinology, cardiology and psychology. Patients see specialists as needed.

(updated 3/2008)

Colorado

Denver Children's Hospital
HOPE Clinic

1056 East 19th Ave, B115
Denver, CO 80218
Coordinator: Genevieve Sylvain
(303) 864-5441
Medical Director: Brian Geffe, MD

(updated 12/2006)

Connecticut

HERO'S (Health, Education, and Research Outcomes for Survivors) Clinic

Yale Cancer Center
New Haven, CT 06520
(203) 785-4640
Nurse Clinician: Kim Trotta, RN
Supervising Physician: Dr. Nina Kadan-Lottick

Sees patients of any age previously diagnosed with childhood cancer (at an age <21 years) who are at least 3 years since diagnosis. Meets 1st and 3rd Tuesday of every month.

(updated 12/2006)

Florida

Children's Hospital of Southwest Florida
PACE (Pediatric After Cancer Experience Clinic)

Pediatric Hematology-Oncology Program
Children's Hospital of Southwest Florida
9981 S. Healthpark Drive Suite 156
Ft. Myers, FL 33908
Pam K. Wojciki, MS, RN-CS, ARNP, CPON
(239) 432-3333 main office
pam.wojciki@leememorial.org

Meets weekly; patients seen by the clinic coordinator with 2 pediatric oncologists on site.

(updated 12/2006)

Georgia

Children's Healthcare of Atlanta
AFLAC Cancer Survivor Program

5455 Meridian Mark Suite 400
Atlanta, GA 30342
(404) 785-1717
Coordinator: Melissa Hamilton, RN MS CPNP
Medical Director: Lillian Meacham, MD

Clinic is held every Tuesday and Wednesday; treats survivors up to age 20.

(updated 12/2006)

Illinois

Children's Memorial Hospital
STAR Clinic

2300 Children's Plaza
Chicago, IL 60614

For an appointment, call Tricia Salicete at (773) 880-4584
Coordinator: Barbara Lockert RN
Program Director: Kimberley Dilley, MD

Meets every Wednesday; treats survivors up to age 23.

(updated 1/2007)

Children's Memorial Hospital/Northwestern Memorial Hospital
Northwestern Medical Faculty Foundation
Star Program for Young Adult Survivors

Survivors Taking Action & Responsibility Comprehensive Care for Survivors of Pediatric Malignancies

675 N. St Clair 18-200
Chicago, IL 60611
Medical Director: Aarati Didwania, MD
Clinical Nurse Specialist: Karen Kinahan, MS, RN
(312) 695-4979
kkinahan@nmff.org
Clinic meets Tuesday afternoons twice a month.

Treats survivors over 18 years old who are 5 years post diagnosis.

(updated 12/2006)

University of Chicago
Center for Survivors of Childhood Malignancies

Program Director: Tara Henderson, MD, MPH
Nurse Practitioner: Beverly Dooley, RN, MSN
Phone: (773) 834-8115

Meets weekly; treats children, teen, and adults.

(updated 12/2006)

Advocate Hope Children's Hospital
Pediatric Oncology Survivorship in Transition (POST) Clinic

Keyser Family Pediatric Cancer Center
Advocate Hope Children's Hospital
4440 W. 95th St
Oak Lawn, IL 60453
(708) 684-4042
Medical Director: Sharad N. Salvi, M.D.
Nurse Coordinator: Linda Rivard, R.N.

Meets on Tuesdays. Sees patients 3 years off treatment, provide referrals to any sub-specialities, survivors are transitioned to the STAR program at Northwestern when they are 21.

(updated 7/2007)

Indiana

Riley Hospital for Children
Indiana University School of Medicine

Childhood Cancer Survivor Program
Riley 4340
702 Barnhill Drive
Indianapolis, IN 46217

Coordinator: Ann Haddix, RN, CPNP
Medical Director: Terry Vik, MD

Meets the first and fourth Wednesda of the month (more during the summer); sees children, teens, and will refer adults.

Clinic Appointments (317) 274-2143 ro (800) 238-8399

(updated 12/2006)

Maryland

Johns Hopkins Kimmel Cancer Center Long Term Follow-Up Clinic
The Michael J. Garil Leukemia Survivors Program for Children, Adolescents and Adults

Baltimore MD 21231
410-955-8751 (Under 21 years old); 410-955-8893 (Over 21 years old)
Coordinator: Kathy Ruble, RN
Physician Contacts: Robert J. Arceci, M.D., Ph.D. and Judith Karp, M.D.

(updated 1/2007)

Massachusetts

Dana-Farber Cancer Institute
David B. Perini, Jr. Quality of Life Clinic for Childhood Cancer Survivors

44 Binney Street
Boston, MA 02115
(617) 632-5124

Coordinators: Nichole Falg; Rebecca Birdsall
Program Director: Lisa Diller, MD
Website: David B. Perini Quality of Life Clinic

Meets Tuesdays and Thursdays; sees children and adults.

(updated 12/2006)

Dana-Farber Cancer Institute
Pediatric Neuro-Oncology Outcomes Clinic

44 Binney St, SW 331
Boston, MA 02115
(617) 632-2680

Coordinators: Abby Williams; Cindy Lau
Christopher Turner MD

Website: Pediatric Neuro-Oncology Outcomes Clinic

Meets Thursdays; Sees children and adult survivors of pediatric brain and spinal cord tumors.

(updated 12/2006)

Michigan

University of Michigan
Long-Term Follow-Up Clinic
Department of Pediatric Hematology/Oncology

1500 East Medical Center Dr.
Ann Arbor MI 48109
(734) 936-9814
Coordinator: Marcia Leonard, RN, PNP
Medical Director: Valerie Castle, MD

(updated 12/2006)

DeVos Children’s Hospital
The After-Care and Transition (ACT) Program

Division of Pediatric Hematology/Oncology and Blood and Bone Marrow Transplantation
330 Barclay NE Suite 203
Grand Rapids, MI 49503

(616) 391-2238
Coordinators: Colleen Gardner and Michele Van Soelen
Medical Director: David Freyer, MD

Website

The ACT clinic meets on two Wednesdays a month; in addition, they meet once a month for BMT survivors and once a month for brain tumor survivors. It serves both children and adult survivors of childhood cancer.

(updated 12/2006)

Minnesota

Long Term Follow-Up Clinic, University of Minnesota Hospital

Harvard St. and East River Rd.
Minneapolis, Minnesota 55455
Coordinator: Nancy Youngren
To speak with Nancy Youngren please call (612) 626-2140
To schedule an appointment: (612) 625-5411
Joseph Neglia, MD, and Daniel Mulrooney, MD
Scott Baker, transplant follow-up

Clinic meets every Friday. Sees children and adults.

(updated 12/2006)

Children's Hosptials and Clinics of Minnesota

Minneapolis: Children's Hosptials and Clinics of Minnesota
2525 Chicago Ave
Mailstop 32-4150
Minneapolis, MN 55404
Nurse coordinator: Vicki Schaefers, RN, CNP-Peds
Medical director: Dr. Joanna Perkins
Appointments: (612)813-5940
Contact Vicki: (612)813-6543

Patients seen on Tuesdays. We see children and young adults at least 3 years off therapy. We see survivors up to the age of 24 and then transition them to primary care providers, but they continue to act as consultants on an as-needed basis.

St. Paul: Children's Hospitals and Clinics of Minnesota
347 N. Smith Ave
Mailstop 70-301
St. Paul MN 55102
Nurse coordinator: Vicki Schaefers, RN, CNP-Peds
Medical director: Dr. Joanna Perkins
Appointments: (651)220-6732
Contact Vicki: (612)813-6543

Patients seen on Mondays. We see children and young adults at least 3 years off therapy. We see survivors up to the age of 24 and then transition them to primary care providers, but they continue to act as consultants on an as-needed basis.

(updated 5/2007)

Missouri

St. Louis Children's Hospital/Washington University School of Medicine
Late Effects Clinic

One Children's Place
St. Louis, MO 63110

Nurse coordinator: Jeanne Harvey
Medical Director: Robert Hayashi, MD
For appointment call (314) 454-6048 or (314) 454-6018.

Meets twice a month; sees children and young adults who are at least 2 years off therapy.

(updated 12/2006)

New Jersey

Hackensack University Medical Center
Tomorrow’s Children’s Institution
Cure and Beyond

385 Prospect Ave
Hackensack NJ 07601
(201) 487-8987

Program Director: Michael B. Harris, MD
Coordinator: Hope Castoria, RN
Beverly Ryan MD

Sees both child and adult survivors of pediatric cancer.

(updated 12/2006)

New York

Memorial Sloan Kettering Cancer Center
Long-Term Follow-Up Clinic
Department of Pediatric Oncology

1275 York Ave
New York, NY 10021

Divided into two clinics:

Charles Sklar MD
Nurse practitioners: Elaine Pottenger,CPNP and Debbie Diotallevi, CPNP
(212) 639-8138
See pediatric patients up to age 18.

Kevin Oeffinger, MD
Nurse practitioners: Roseann Tucci, ANP and Beth Whittam, CFNP
(212) 639-8469
See adult survivors of childhood cancer.

Website: MSKCC Long-Term Follow-Up Program

(updated 3/2008)

SUNY Upstate Medical University
KNOT: Kids Now Off Therapy Clinic

750 E Adams St.
Syracuse NY 13210
(315) 464-7229
Coordinator: Susan Shaw, RN, MS, PNP
Program Driector: Irene Cherrick, MD

(updated 12/2006)

Center for Survivor Wellness
Herbert Irving Child and Adolescent Oncology Center
Columbia University Medical Center

161 Fort Washington Avenue, Garden Suite
New York, NY 10032
(212) 305-2354

Program Director: Jennifer Levine, MD, CSW
Nurse Practitioner: JoAnn Benn, FNP
Clinical Coordinator: Solimar Curumi

We see patients on Wednesdays in the Garden Suites and provide comprehensive medical care, review of treatment summary and followup recommendations and a comprehensive nutrition, exercise, and psychosocial evaluation.

(updated 12/2006)

Roswell Park Cancer center
Long Term Follow Up Project

Elm & Carlton
Buffalo NY 14263
(716) 845-8011
Nurse Coordinator: Theresa Carbone MS RN CPNP
Medical Director: Daniel Green MD

Meets on Tuesdays. Sees children, teens, and adults; provides referrals.

(updated 1/2007)

Generation of Survivors
The Pat Lyons Long Term Follow-up Program
The Cancer Center for Kids at Winthrop University Hospital

200 Old Country Road Suite 440
Mineola, NY 11501
(516) 663-9400 for information and to make appointments.
Medical Director: Mark Weinblatt, MD
Nurse Practitioner: Sharon Coritsidis, RN MSN CPON CPNP
Nurse Coordinator: Cathy Shimmel RN MA CPON

The clinic meets bimonthly on Thursday afternoons and sees survivors of pediatric cancers of any age who are at least two years off treatment; provides referrals.

(updated 5/2007)

North Carolina

Duke University Medical Center

Pediatric Hem/Onc
Erwin Road
Durham, NC 27710 USA
919-684-3401 (appts for children and teens)
(919) 684-8964 (appts for adults)
Philip Rosoff MD (children and teens)
Carlos DeCastro (adults)

Clinic meets Thursdays once a month for children and teens (up to age 18); adults are seen every third Thursday.

(updated 12/2006)

Ohio

Children’s Hospital Medical Center
ATP Five-Plus Clinic

333 Burnette Ave
Cinninnati, OH 45229
(513) 636-3512
Coordinator: Judy Correll, RN, CPNP
Karen Burns, MD; Raj Nagarajan, MD
Website: description of and contacts for the ATP Five-Plus Clinic

Sees children, teens, and adult survivors; will refer.

(updated 12/2006)

Akron Children's Hospital
START-UP clinic

"Staying Together After Recovery and Tapping Unlimited Potential."
One Perkins Square
Akron, OH 44308
(330) 543-8580

Clinic Coordinator: Pam Jones, RN
Program Director: Sarah Friebert, MD

Any childhood cancer survivor who has been off treatment for two years is eligible to participate in the START-UP program, regardless of age. The clinic usually meets only once a month but does plan additional clinics when students are off from school.

(updated 12/2006)

The Center for Survivors of Childhood Cancer
Rainbow Babies & Children's Hospital

11100 Euclid Avenue
Cleveland, OH 44106
(216) 844-3070

Program Director: Lisa Vitkus, MPH
Chad Jacobsen, MD
Web site

The clinic is held 2 times per month and we see children, teens and adult survivors of childhood cancer. All patients receive a summary of their cancer treatment, medical and psychosocial evaluation, screening and education about late effects, and referral and ancillary testing as needed.

(updated 12/2006)

Pennsylvania

Children’s Hospital of Philadelphia
Long-Term Follow Up Clinic

34th & Civic Center Blvd
Philadelphia, PA 19401
(215) 590-3025
Coordinator: Wendy Hobbie
Nurses: Sue Ogle CPNP and Claire Carlson, RN, BSN, Maureen Reilly, RN, BSN
Physicians: Jill Ginsberg, MD, Anna T. Meadows, MD

Sees both child and adult survivors.

(updated 12/2006)

Lance Armstrong Foundation Living Well After Cancer Program
The University of Pennsylvania Cancer Center

Abramson Cancer Center
University of Pennsylvania
Penn Tower Hotel #1428
3400 Spruce Street
Philadelphia, PA 19104
(215) 615-3371

Program Director: Linda A. Jacobs, PhD, RN
Medical Director: Anna T. Meadows, MD

Adult cancer survivorship program and a transition program for adult survivors of childhood cancers.

(updated 12/2006)

Tennessee

St. Jude After Completion of Therapy (ACT) Clinic
St. Jude Children's Research Hospital

332 North Lauderdale; Mailstop 600
Memphis, TN 38105
(901) 495-4680

The clinic currently meets on Tuesdays (solid tumors), Wednesdays (central nervous system tumors) and Thursdays (leukemia/lymphoma). The clinic limits services to patients treated at St. Jude. Patients treated at other centers who move to the Memphis area are also eligible for services. St. Jude patients are eligible for transfer into the ACT Clinic when they are 5 years from diagnosis and in remission for at least 2 years after completion of therapy. Patients are seen annually by the ACT Clinic staff until they are 10 years from diagnosis and at least 18 years of age. Most adult survivors at the 10 year time point are discharged as alumnus of the clinic and monitored annually through a mail questionnaire distributed by the St. Jude Cancer Registry. Some St. Jude alumni may be invited back for clinic evaluations related to specific research investigations. The ACT Clinic staff also provides a variety of services to St. Jude alumni, including counseling about cancer-related health risks, communication with local providers and insurance companies regarding cancer history, organization of treatment summaries and personal health records, and assistance with securing community resources.

Clinic director is Dr. Melissa Hudson.
A solid tumor oncologist (Dr. Sheri Spunt), neuro-oncologist (Dr. Brannon Morris), and leukemia/lymphoma oncologist (Dr. Melissa Hudson) work with Dr. Cash (medical oncologist/internist), 6 nurse practitioners, and 2 social workers to provide services to the St. Jude ACT and Alumni survivors.

(updated 12/2006)

Childhood Cancer Survivorship Program
Vanderbilt Children's Hospital

Coordinator: Kristin Campbell, MSN, CPNP
Medical Director: Jill Simmons, MD
2220 Pierce Avenue, 397 PRB
Nashville, TN 37232-6310
Physicians: Pinki Prasad, MD and Travis Bowels, MD
(615) 936-8310
website

The clinic meets on the second and fourth Fridays of the month. Sees childhood cancer survivors of any age. Survivors are defined as anyone off therapy for 2 or more years, or more than 5 years from diagnosis.

(updated 12/2007)

Texas

Children's Medical Center of Dallas
After the Cancer Experience (ACE)

1935 Motor Street
Dallas TX 75235-7794
(214) 456-2948
Coordinator: Debra Eshelman, RN, CPNP and Cindy Cochran, RN, CPNP
Dan Bowers, MD (sees children and teens)
Hong Xiao, MD and Alex King, MD (see adults)

Sees survivors 5 days a week.

(updated 12/06)

MD Anderson Cancer Center
Long Term Survivor Clinic

1515 Holcombe, Box 87
Houston Tx 77030
(713) 792-5410
Coordinator: Nita Burrer RN, ANP, CNS
Medical Director: Alan Fields, MD

Meets every Monday and Thursday; sees children, teens, and adult survivors of childhood cancer.

(updated 1/2007)

Texas Children's Hospital
Late Effects Clinic

Hematology/Oncology
6621 Fannin St.
CC-1510.21
Houston Tx 77030
(832) 822-4727
Coordinator: Gaye Hamor, MSHA
Medical Director: ZoAnn Dreyer, MD
Clinic meets on Wednesdays and Fridays.

(updated 12/2006)

Cook Children's Medical Center
Life After Cancer Program at the Hematology & Oncology Center

901 Seventh Avenue, Suite 220
Fort Worth, Texas 76104
(817) 810-2125
Coordinator: Lisa Bashore MS RN CPNP
Program Director: Jeffrey C. Murray, M.D.

Treats survivors up to age 30 and will refer adults. Clinic days vary based on need. Typically every Monday and Thursday.

The Lance Armstrong Foundation and Cook Children's Medical Center in Fort Worth are partners in the Life After Cancer program.

(updated 8/2007)

Childhood Cancer Survivors Clinic
Children's Cancer and Blood Disorders Center

Christus Santa Rosa Children's Hospital
333 N Santa Rosa St.
San Antonio, TX 78207
(210) 704 2187

Nurse Coordinator: Dina Paz
Medical Director: Shafqat Shah, MD

Clinic is held on Tuesdays.

(updated 1/2007)

LIVESTRONG Survivorship Center

LIVESTRONG Survivorship Center
Dell Children's Medical Center of Central Texas
1301 Barbara Jordan Blvd, Ste. 402
Austin, TX. 78723
(512) 628-1910
Website

Nurse Practitioner: Christina Allegretti, RN, CPNP, CPON
Medical Director: James Sharp, M.D.

Clinic times are patients Tuesdays, Wednesdays, and Thursdays. Sees children/teens/young adults who are at least 2 years off of treatment for a childhood cancer. In one comprehensive visit they provide a concise treatment summary, education on potential late effects unique to each patient, a psychosocial assessment completed by a licensed clinical social worker, nutrition consult from a registered dietician, referrals to neuro-psych testing by a certified child life specialist, assistance with insurance or financial concerns, and finally - support groups specifically created for survivors (and parents and siblings).

(updated 4/2008)

Washington

Fred Hutchinson Cancer Research Center Survivorship Program, A member of the LIVESTRONG Survivorship Center of Excellence Network

1100 Fairview Ave N Mailstop LF-268
Seattle WA 98117
1-866-543-4272
survivor@fhcrc.org
Director: Debra L. Friedman MD
Coordinator: Emily Jo Rajotte, MS
Nurse Practitioners: Karen Wilkinson ARNP, Polly Lysen-Halpern ARNP

This program sees all survivors of pediatric and medical oncology regardless of age, type or place of treatment. Referrals can be also made to community affiliates in Eastern Washington and Alaska.

(updated 12/2006)

Washington, D.C.

Long Term Survivor Clinic
Department of Hematology-Oncology

Children's National Medical Center
111 Michigan Ave., NW
4th floor
Washington, DC 20010
Appts: (202) 884-2140 and ask for the long-term survivors clinic
Medical Director: Dr. Gregory H. Reaman
Nurse Coordinator: Susan Tramazzo, 202-884-4256

Clinic meets every Monday and sees all ages of survivors.

(updated 12/2006)

Wisconsin

University of Wisconsin Hospital and Clinics
Caring for Life Clinic

600 Highland Ave.
Madison, WI 53792
(608) 263-6200
Coordinator: Peggy Possin
Medical Director: Diane Puccetti, MD

Clinic meets twice a month and sees survivors of all ages.

(updated 12/2006)

Children's Hospital of Wisconsin
Next Steps Clinic

9000 W. Wisconsin Ave
Milwaukee, WI 53226
(414) 266-2774
Coordinator: Katie Murphy
Program Director: Ann Warwick, MD

Meets on the 2nd and 4th Wednesday of the month; treats children, adolescents, and young adults.

(updated 12/2006)

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