- Essential thrombocythemia,
- polycythema vera,
- chronic myelogenous leukemia,
- agnogenic myeloid metaplasia (primary myelofibrosis),
- myelofibrosis (secondary) and
- myelodysplastic syndrome
We invite you to become a subscriber to this unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to agnogenic myeloid metaplasis (primary myelofibrosis), chronic myelogenous leukemia, essential thrombocythemia, myelodysplastic syndrome, myelofibrosis and polycythemia vera.
Our discussions include patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices and alternatives. The principal focus is expected to be information and reassurance for patients and loved ones.
This list is entirely free, and is run completely by volunteers. While some of the messages will be devoted to announcements and discussions of medical advances, as well as to therapeutic treatment, both main stream and alternative; the main focus of the MPD-NET Mailing List is intended to be a forum for patients with Myeloproliferative Disorders and their loved ones to exchange experiences on coping with the disease and to gain information which is often hard to find. SUBSCRIBING When you subscribe to MPD-NET you join a group of over 1650 patients, caretakers, doctors, nurses, and/or social workers from over 40 countries who share information about diagnoses, treatment possibilities, options and alternatives. No specific medical advice will be provided for individuals. That must be discussed with one's own medical practitioner. However, suggestions for clinical trials, treatment possibilities, cancer centers, and patient experiences with each of the above, are grist for the MPD-NET mill.To SUBSCRIBE email:listserv@listserv.acor.o rg subject: blank (If you're on AOL use a dash) message: subscribe MPD-NET your first and last namesNeed help subscribing to the list? MPD-NET-request@l istserv.acor.org POSTING Once you have joined our list you are encouraged (if you feel like it) to send a note to the list to introduce yourself. Do include specific details about your disease or that of your loved one, if you are seeking help, so that the responses from the list can be relevant to your situation. The answers to your post may be relevant to many on the list. So please be sure that you disable the reply to your email address in your mail program. Otherwise answers will go directly to you. Please do not be reluctant to post your questions and responses. Many of us are in the same situation. Do not worry about typos or spelling. Do not let these concerns keep you from the help that the mailing list can provide. <\a>SECURITY One must join (subscribe) to be able to post to the list. Only the owners of MPD-NET can determine that you are subscribed. No one else can retrieve the list of subscribers. Only subscribers can send email to MPD-NET and only subscribers directly receive email distributed by the MPD-NET listserv. However, the MPD-NET archives are publicly accessible, so consider this when sending email to MPD-NET . In that sense, any message posted to the list is a PUBLIC message. ARCHIVES and FILES Monthly archives are available. listserv@listserv.acor.org Message: Index MPD-NET Archives are available at http://www.acor.org and http://listserv.acor.org Files Available via email Email listserv@listserv.acor.org with the message:
message: get MPD-NET.ACRONYMS - Abbreviation of Terms used frequently in Mpd-Net onc Posts message: get MPD-NET.NETINFO - Short file of net sites supporting our hematological diseases.
If you have any problems, don't be frustrated. Just write your friendly list owners and you will get help:
Address: mpd-net-request@listse rv.acor.org Subject - Short description of your problem Message - Detailed description of your problem
CHANGE THE SUBJECT HEADING
from: Mpd-Net Digest-Date
to: disease, subject, or individual being replied to
In that way, your response will be associated with the original post that appeared on MPD-NET and archives searching will be facilitated. This should also make it easier for those who prefer to concentrate on only one disease.
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Information posted to this mailing list is for educational purposes only and is not intended to replace or give any medical advice or treatments. Any information pertaining to your health should be reviewed with your personal healthcare professional.
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