[Note: In this
list, the first year is the birth year,
and "Class of..." refers to year MM was diagnosed.]
Jack Aiello ,
San Jose, CA;
jackaiello@comcast.net
1949 / Class of ’95 / Type: IgG Kappa light chain
/ Updated: 3/08
Anonymous #1
1927 / Class of '83 / Type:
Solitary Plasmacytoma progressing to Myeloma /
Surgery, chemo / Long-term remission / Updated: 3/04
Marla Barnett ,
Texas;
dreamcatcher77859@peoplepc.com
1958 / Class of '00 / Family history of immune system
diseases /
Possible Aspartame toxicity / Updated: 6/06
Bill Bauknecht ,
East Falmouth, MA;
billbauknecht@comcast.net or
billbauknecht@aol.com
1937 / Class of '96 / Tumors, radiation, SCT, relapse, Thal
/ Remission / Updated: 6/08
Martin Boling ,
Canberra, Australia;
martindaholder(at)emailme(dot)com(dot)au
1951 / Class of 2000 / Type: MGUS to IgG-Kappa within 3 mo.
/ Thal-Dex / Remission / Updated: 1/09
James
D. Bond, Shaker Heights, OH;
jim.bond@ey.com
1948 / Class of '92 / Type: Kappa Light Chain / 3x SCT,
other treatments, active life / Last update: 3/09
Helen Bos ,
Sioux Center, IA
1938 / Class of '88 / Type: IgA / Chemotherapy &
Aredia / Remission / Updated: 1/09
Gary
Brucato ;
GBru165221@aol.com
1954 / Class of '06 / Type: IgG Kappa / PBSCT, Remission /
Updated: 10/07
Claire Bruhns , Canberra, Australia;
bernardparker@velocitynet.com.au
1957 / Class of '07 / Type: Lambda Light-chain / Kidney
failure / Holistic treatment / Updated: 5/08
Steve
Carson , Winston-Salem, NC;
scarson@polynetgel.com
1943 / Class of '05 / Type: IgG Kappa /
Velcade-Dex-Thalidomide, Revlimid-Dex / Updated: 6/07
Gary Christison, Abbotsford, BC, Canada;
global_cowboy@hotmail.com
1961 / Class of '05 / Broken pelvis / Chemo and SCT / Updated: 7/06
Jeremiah J. Colihan, Pennington, NJ;
jjcolihan@comcast.net
1957 / Class of '04 / Tandem PBSCT, remission / Updated:
1/09
Larry
Conner , Rutherfordton, NC;
appwild@gmail.com or
my wife at
tconner@rcsnc.org
1968 / Class of '08 / Lytic lesion in shoulder / Radiation,
chemo / SCT planned / Last update: 5/09
Ruby
Conwell, Chicago, IL;
jamestoo@comcast.net
1932 / Class of '06 / Lambda light chain / Broken hip /
Velcade / Updated: 4/06
Judy
Crawford, Yreka, CA;
jcrawford110@sbcglobal.net
1949 / Class of '52 / Type: IgA Lambda, smoldering / Normal
Hem. / Cell harvest / Updated: 10/08
J.C. Dale ,
Vancouver, B.C.;
jccanam@axion.net
1962 / Class of '03 / Type: IgG / Matched-donor allo
transplant / Updated: 12/06
Chrissy Degennaro, Jersey Shore, NJ;
landslide7@verizon.net
1969 / Class of '06 / Type: IgA Kappa / Thal/Dex, auto SCT /
Remission until Dec 08 / Last update: 9/09
Ralph D'Errico ,
Tucson, AZ;
emdnurse@sbcglobal.net
1952 / Class of '01 / Type: IgG / "Midi"-allo /
Remission, GvHD / Updated: 1/09
Chris Ditta, Henderson, NV; vdittav@aol.com
1963 / Class of '02 / Bone involvement / Chemo, dialysis /
Updated: 12/06
Kathy
D'Orlando, Ormond Beach, FL;
kdorlando@cfl.rr.com
1956 / Class of '03 / Type: IgA Kappa / Tandem SCTs /
Revlimid / Updated: 9/06
Robin Downing , Las Vegas, NV;
crazylucy8@yahoo.com
1962 / Class of '06 / Type: IgA / SCT, Velcade + Doxorubicin / Updated: 11/09
Hélène
Dubé, Montréal, Canada;
richard.vachon4@sympatico.ca
1957 / Class of '03 / Type: IgA Lambda / Chemo, spine
fracture / Updated: 5/05
David Emerson, Chagrin Falls, OH;
daviddecemerson@me.com
1959 / Class of '94 / Type: non-secretory / PBSCT, anti-neoplaston
/ Remission / Updated: 7/09
Fred
Epley, near Spokane, WA;
jeepepley@msn.com
1950 / Class of '06 / Type: IgA / plasmacytoma /
radiation, chemo, SCT / Remission / Updated: 2/09
Diana
Fearon;
defearon@houston.rr.com
1952 / Class of '99 / MGUS, bone lesions, fatigue /
Blood-building supplement / Updated: 6/07
Danny
Finn, near Mammoth Cave, KY;
Drfinn2k2@yahoo.com
1973 / Class of '07 / IgG Lambda LC / Velcade+Dex; auto
SCT; allo planned / Updated: 8/09
Kathy Fortier ,
Midland, MI;
kathjune@charter.net
1961 / Class of '98 / Plasmacytoma on optic nerve,
surgery, transplant / Remission /
Updated: 1/09
Sheryl Frank, Smithtown, L.I., NY;
FraShar2@aol.com
1949 / Class of '95 / Bone lesions / Rad, Chemo, SCT /
Remission / Updated: 2/07
Bart
Freitag , Elko, Nevada;
bsfreitag@frontiernet.net
1964 / Class of '04 / Type: IgA Kappa Light Chain / 2x SCT /
Remission / Updated: 1/09
Pascale Gaujacq, Paris, France;
edfinacg@aol.com
1959 / Class of '06 / Bone lesions: skull, arm, fracture repaired
/ Type: IgA Lambda /
VAD, Thal/Dex, Velcade, CHOP 14 / Updated: 3/07
Reed Gaulding,
ReedGaulding@aol.com
1950 / Class of '01 / Type: IgA Lambda / Updated:
7/04
John
Gillan, Boise, IA;
gillbunch@hotmail.com
1960 / Class of '05 / Type: IgA / Bone fractures / SCT,
Thal/Pred / Remission / Updated: 1/09
Barb Hammack ,
Kensington, MD;
BHboogie@aol.com
1946 / Class of '91 / Type: IgG
/ Transplant / Updated: 1/09
Cath
Harwood , Bendigo, Victoria, Australia;
bob_cat@bigpond.com
1946 / Class of '02 / Type: IgG / Bone involvement /
Radiation, chemo, Revlimid / Updated: 9/08
John
Hasson, Winter Haven, FL;
jfhasson@verizon.net
1952 / Class of '06 / Type: IgA Lambda light chain / VAD,
Velcade, SCT / Updated: 8/08
Robin Holcomb, Glens Falls, NY;
robinfreebird2003@yahoo.com
1959 / Class of '06 / Type: IgA / Dex and Thal / Updated:
9/09
Steven Howell ,
Quinnsgranny9279@aol.com
1962 / Class of '96 / Plasmacytomas in head, SCT, Thal /
Updated: 5/03
Jacklyn Inman, Dowagiac, MI;
cloudeone@verizon.net
1958 / Class of '02 / Type: IgG; Autologous SCT / Updated: 2/06
Jean
Jenkins, Lexington, MO;
rjenks@myturbonet.com ;
shilo8969@aol.com
1939 / Class of '05 / Type: IgG Lambda / Thalidomide & Dex,
SCT / Updated: 10/09
Barbara Jewell ,
Vancouver, WA;
Uppityx9@cs.com
1947 / Class of '01 / Type: Kappa LC / Updated: 8/04
Mark
Edward Johnston, Santa Rosa Beach, FL;
markedjohnston@gmail.com
1967 / Class of '99 / Type: IgA / Tandem transplants + chemo
/ Updated: 10/09
Catherine Kerr , Watertown, MA;
catherine_kerr@hms.harvard.edu
1964 / Class of '96 / Type: IgG / Meditation and Chinese
martial arts / Updated: 1/07
Duane
Klein ,Henderson, NV;
DKlein8722@aol.com
1942 / Class of '04 / Type: IgG / Thal + Dex / Remission
/ Updated: 1/08
Judy
Knopp , PA;
juleknopp@aol.com
1939 / Class of '04 / Prior cancer, bone inv. / Chemo, Allo
SCT
/ Remission / Updated: 1/09
Stephan Laage-Witt ,
Loerrach (Germany);
stephan@laagewitt.de
1959 / Class of '05 / Type: IgD / auto + allo transplants /
Complete remission / Updated: 12/07
Regina Lanz, Fort
Lauderdale, FL;
regblanz@mintofla.com
1955 / Class of '98 / Type: Non-secretory / Tandem
transplants Remission / Updated: 10/06
Pennie Lawrence , Starr, SC;
crlawlor@aol.com
1952 / Class of '01 / Type: IgG Kappa / Chemo, 2xSCT /
Remission / Updated: 10/03
Mindy Lernihan , Fredericksburg, VA;
Mekaco79@cs.com
1954 / Class of '92 / Kappa Light-Chain / SCT, Kidney
transplant / Remission / Updated: 1/09
Ron
L'Italien, New Hampshire;
Dawndrakski@comcast.net
1967 / Class of '04 / Type: IgG, smoldering MM / Zometa /
Updated: 9/08
Alex
Maas, San Diego, CA;
a.maas@cox.net
1959 / Class of '03 / Type: IgG Lambda / Chemo / Updated: 11/07
Kandee
Maddrell, Monroe, WI;
kanrn@yahoo.com
1958 / Class of '03 / Bone involvement, SCT, kidney
transplant / Remission /
Updated: 3/09
Ronald D.
Main, Midland, MI;
Ron2300@aol.com
1946 / Class of '00 / IgG Kappa / Successful matched donor
allo BMT / Updated: 5/04
Marvin Mason , Hemet, California;
marvter@msn.com
1938 / Class of '02 / Type: IgA Kappa Light Chain /
PBSCT+Thal / Remission / Updated: 1/09
Brenda Mather, Wirral, England;
BEMather@aol.com
1942 / Class of '94 / Bone pain / Chemo, remission / Updated: 7/06
Gloria Monari , Palm Bay, Florida
19?? / Class of '92 / Bone and organ involvement / Chemo /
Updated: 7/04
John Nesci ,
Freehold, NJ;
oakyjohn@cs.com
1936 / Class of '90 /
Transplant Class of '94 / Type: IgG
Kappa / Updated: 1/09
Lorna
Newlin, Owens Cross Road, AL;
lorna@cedar-creek.net
1938 / Class of '98 / Type IgA Kappa / Syngeneic (twin) SCT,
remission / Updated: 8/07
Robert F. Oberle,
Chantilly, VA;
robertoberle@verizon.net
1938 / Class of '02 / Type
IgG Lambda / lytic lesions, plasmacytoma /
PBSCT, remission / Updated: 8/09
James Vincent Palomar , Livermore, CA;
luckystrmgt@comcast.net
1962 / Class of '97 / Type: Solitary Plasmacytomas / Diverse
treatments / Updated: 3/08
Patricia Pappas , Foresthill, CA;
ppappas@ftcnet.net
1952 / Class of '07 / Type: Lambda L.C. / Spine compression
/ Natural therapy / Updated: 4/08
Kathy Pedersen ,
Petesblessed11@yahoo.com
1959 / Class of '98 / Type: IgG, Kappa light-chain / Mini-allo,
remission / Updated: 3/08
Darlene Pfeiffer , Atlanta, GA;
darlee53@charter.net
1946 / Class of '08 / Type: IgG / Back pain / Chemo,
SCT / Remission, relapse / Updated: 4/09
Bernard Pilcher,
Ontario, Canada;
bernard.pilcher@sympatico.ca
1938 / Class of '93 / Updated: 9/06
Joanie Pinson,
Maryland;
jtpinson@yahoo.com
1953 / Class of '99 / Spinal fractures / Radiation, PCSCT /
Remission / Updated: 5/07
Helen Protasewicz, Edgewater, FL;
hjprotas@bellsouth.net
1939 / Class of '06 / Type IgA / Back fractures / Chemo and
PBSCT / Updated: 10/07
David
Puente , CA;
habubrat@gmail.com
1959 / Class of '08 / PBSCT after hyperbaric treatment / ALA
for neuropathy /
Updated: 12/08
David
Rabl, Victoria, Australia;
rabl.dave.m@edumail.vic.gov.au
1952 / Class of '00 / Bone thinning / SCT, remission / Updated: 1/09
Peter Randløv ,
Copenhagen, Denmark;
randlov@post9.tele.dk
1942 / Class of '97 / Updated: 1/09
Bob Rinker ;
bob.rinker@comcast.net
1942 / Class of '94 / Type: IgG / Spine fracture /
Updated: 1/09
Amy
Roller , Sidney, OH;
ajroller4@hotmail.com
1958 / Class of '05 / DVD, pulsed Dex, Revlimid, PBSCT /
Updated: 7/08
Bob Rose ,
Houston, Texas;
taxcatkim@yahoo.com
1969 / Class of '04 / Type: IgA Kappa LC / Thal+Dex / Updated: 8/07
Dorothy A.
Russell , Inverness, FL;
k4fnu@tampabay.rr.com
1926 / Class of '95 (MGUS '85)
/ Type: IgG /
MGUS progresses to MM over 10 years / Updated: 1/09
Jun
Sarmiento, Manila, Philippines;
jeansar@gmail.com
1961 / Class of '06 / Type: IgG Lambda / PBSCT Remission,
relapse /
Chemo, mini-allo (detailed description) / Updated: 10/09
Barbara Schultz ,
Chicago, IL; barbschultz49@comcast.net
1950 / Class of '01 / Type: IgA / Thal+Dex / Updated:
1/03
Jane Simpson ,
Bridgnorth, Shropshire, UK;
Hippychickdeva@aol.com
1962 / Class of '99 / Type: Kappa
Light-chain, BJP / Updated: 9/05
Ebbe
R. Skov , Mission Viejo, CA;
ERSkov@aol.com
1936 / Class of '99 / Type: Kappa LC / Mini-allo + relapse /
Updated: 7/05
Sandra Smith ,
Devonport, Tasmania;
sadrismith@yahoo.com.au
1945 / Class of '96 / Type:
solitary plasmacytoma / Updated: 1/09
William Smith , Reading, MA;
modlcitzen@aol.com
1952 / Class of '95 / Type: IgA / Bone involvement / BMT,
Decadron, new chemo / Updated: 1/09
Cheryl Suzanne
Spiese , Binghamton, NY;
cspiese@binghamton.edu
1947 / Class of '92 / Type: IgA
/ Using alternative medicine / Updated: 9/05
Carole Storm , NY state
1940 / Class of '05 / Bone lesions, fracture / Chemo, Revlimid+Dex / Updated: 9/07
David
Suwala , Chapel Hill, NC;
dsuwala@verizon.net
1936 / Class of '94 / Type: IgG / Spine reconstruct + X-ray
/ Relapse, chemo / Updated: 8/09
Thoedorou-Moustaka, Greece;
vasiliki19@hotmail.com
1935 / Class of '02 / Type: IgG Kappa / Bone involvement,
ONJ / Updated: 7/06
Charles "Chuck" Thompson, Panama City,
Florida;
cwthompson7002@comcast.net
1963 / Class of '03 / Smoldering Multiple Myeloma / Updated: 2/07
Peter Tischler ,
Arlington, TX;
serenasdad@sbcglobal.net
1939 / Class of '94 / Type:
Kappa / Bone involvement, non-secreting / Updated:
10/07
Denise Villani, Bel Air, MD;
dvillani@arl.army.mil
1954 / Class of '02 / VAD, Thal/Dex, PBSCT, vaccine trial,
remission, relapse, Revlimid / Updated: 6/08
Eric
Vogt, Southern CA;
cdfchief@gmail.com
1942 / Class of '01 /
Type: IgG, Lambda /
Chemo, PBSCT / Remission / Updated:
7/08
Earl
Wachtel , San Jose CA;
wachtel@att.net
1930 / Class of '05 / Type: IgG, stage I / Updated: 5/08
Wei-en Zheng;
pingguo_92@yahoo.com
1939 / Class of '06 / Type: Stage II IgG Kappa-light chain
/ Velcade, Thalidomide / Updated: 6/07