Welcome
LUPUS is a group of 8 sublists, by topic, which addresses the
need for sharing information and support for systemic lupus erythematosus
(SLE), discoid lupus (DLE) and associated diseases that tend to
cluster with lupus. The purpose of this list and its topics is
to provide the vehicle for open communication, with responsibility,
and without rancor.
There will be a separate list, LUPUS-KIDS, for children under 18 suffering
from lupus, or who have a parent with the disease.
While moderated, discussion will not be directed, although may
be redirected when the majority of listowners feels it should
be taken off the list and into private discussion via personal
email. Moderation on the part of each and every subscriber when
posting will be expected--intervention and list control from the
moderators, listowners and list administrator will only be enforced
when the rules of the list and general netiquette are violated.
Should any of your messages not post to the list within 48 hours,
please contact the list owners if you would like explanation
of the moderation/refusal.
This list and its sublists are archived and available to subscribers
only, via password. However, in order to protect yourselves and
your loved ones, please be sure not to post personal contact information
(address, telephone, etc.) to the list. Similarly confidential
information should also be handled via private email.
As autoimmune disease is exacerbated by stress, let this list
be a place of peace and assistance. Whether you suffer the disease,
or suffer for one you love, please do not exact your stresses
on the other participants in this safe place--the rules are not
to inhibit the sharing of information, but to allow its continuity
without harm to those who come here seeking community.
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