These reports present information from a survey of subscribers to CLL, the Chronic Lymphocytic Leukemia Internet Support List. As more information from the survey is analyzed, further reports will appear. At some time in the future, an effort will be made to integrate the reports into one document.

Although written primarily for list subscribers, the reports should interest anyone with CLL or concerned with the experiences of persons with CLL. We are posting the reports as they appear.

o Table 1 - Current Age
o Table 2 - Gender
o Table 3 - Marital Status
o Table 4 - Country of Residence

o Table 5 - Years Since Diagnosis
o Table 6 - Years Since Diagnosis by Age

o Table 7 - Age at Diagnosis
o Table 8 - Stage at Diagnosis
o Table 9 - Rai Stage at Diagnosis by Age at Diagnosis

o Table 10 - Rai Stage at Diagnosis and Treatment by Time Passed Since Diagnosis
o Table 10A - Under 5 Years Ever Treated
o Table 10B - 5 - 9.99 Years Ever Treated
o Table 10C - 10 or More Years Ever Treated

o Table 11 - Time from Diagnosis to Treatment

o Table 12 - Presence of Symptoms at Diagnosis and at Survey Date
o Table 13 - Types of Symptoms at Diagnosis and at Survey Date
o Table 14- Number of symptoms at Diagnosis and at Survey Date

o Who Had Symptoms at Diagnosis?
o Who had Symptoms at Time of Survey
o Summing It Up

o Who Had Few or Many Symptoms at Diagnosis?
o Which Respondents Had Fewer or More Symptoms?
o Number of Symptoms and Time to Treatment
o Table15 - Years to First Treatment By Number of Symptoms at Diagnosis
o Conclusion

o Table 16 - Number and Percent Who Received Each Kind of Treatment
o Table 17 - Number and Percent Receiving Different Combinations of Treatment

o Table 18 - Number and Percent of Treated Who Received Each Kind of Chemotherapy

o Table 19 - Percent with Remissions after Chemotherapy
o Table 20 - Maximum Resmission Periods in Months
o Table 21 - Percent Reporting Side Effects

o Table A - Disruption of Work or Activities

A Note from GrannyBarb