Disruption of Work or Activities
Denise asked: "Jess and others have mentioned that they haven't missed
much work or been slowed down much. Is this common or are they the exception?"
A quick answer to your question is provided by survey respondents' answers
to a question about the degree to which their normal activities had been
disrupted by CLL (not at all, mildly, a lot). The table below shows how
the 340 list survey respondents assessed their experience. To make it more
meaningful, I've tabulated it by years since diagnosis. As you can see,
77-85% of the respondents said they experienced no or mild disruption of
their lives. Especially, interesting is that time passed since diagnosis
seems to make little difference. In a later report, I'll probably
republish these data along with more analysis. In the meantime, I hope
that they will provide you and other newly diagnosed subscribers with a
measure of reassurance and peace.
Table A. Degree of Disruption
Based on Years from Diagnosis
| Years Since Diagnosis
| Degree of Disruption
|
| Number of years
| None
| Mild
| Much
| Total
|
| Percent (Number) Under 5 Years
| 45.45 (115)
| 32.41 (82)
| 22.13 (56)
| 100.00 (253)
|
| Percent (Number) 5-9.99 Years
| 32.84 (22)
| 44.78 (30)
| 22.39 (15)
| 100.00 (67)
|
| Percent (Number) 10 or more Years
| 40.00 (8)
| 45.00 (9)
| 15.00 (3)
| 100.00 (20)
|
| Total Percent Responding
| 42.65
| 35.59
| 21.76
| 100.00
|
| Total Number Responding
| 145
| 121
| 74
| 340
|
Sheldon L. Messinger
Law and Society Center, U.C, Berkeley
Copyright © 1998, 1999 Barbara B. Lackritz and Sheldon L. Messinger
This Page was created Sunday, October 04, 1998
Most recent revision Sunday, May 16, 1999
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