Support for Aplastic Anemia and Myleodysplastic Syndromes
Marrowforums
Marrowforums, is a
web-based discussion forum for people affected by bone marrow
failure diseases, including Aplastic Anemia (AA), Myleodysplastic
Syndrome (MDS) and Paroxysmal Nocturnal Hemoglobinuria (PNH). Marrowforums is a
replacement for the AA-MDS-TALK listserv that was based on AOL.
MDS-AA
An online e-mail list for Myleodysplastic Syndromes and Aplastic Anemia. To subscribe:
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listserv@listserv.acor.org
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none (or add a dash if your mail program requires it)
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subscribe MDS-AA your first and last name
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If you have a signature, delete it.
You can also use the ACOR web
interface for the MDS-AA list .
Acute Lymphocytic Leukemia
Online e-mail list for Acute Lymphocytic Leukemia. To subscribe:
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listserv@listserv.acor.org
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none (or add a dash if your mail program requires it)
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subscribe ALL-L your first and last name |
If you have a signature, delete it.
You can also use the
ACOR web interface for the ALL-L list.
Also see the ALL Resources page from GrannyBarb
and Art's Leukemia Links.
Acute Myeloid Leukemia
Online e-mail list for Acute Myeloid Leukemia. To subscribe:
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listserv@listserv.acor.org
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none (or add a dash if your mail program requires it)
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subscribe AML your first and last name
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If you have a signature, delete it.
You can also use the ACOR web
interface for the AML list .
Also see the AML Resources
page from GrannyBarb and Art's Leukemia Links.
Pediatric Acute Lymphoblastic / Lymphocytic Leukemia
The PED-ALL and ALL-KIDS have now merged into to one list for parents,
friends, and family of children with Acute Lymphoblastic / Lymphocytic
Leukemia.
ALL-KIDS (formerly ALL_KIDS and PED-ALL)
| | e-mail: |
listserv@listserv.acor.org
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none (or add a dash if your mail program requires it) |
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subscribe ALL-KIDSyour first and last name
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If you have a signature, delete it.
You can also use the ACOR web
interface for the ALL-KIDS list.
Leukemia from ACOR's Pediatric Oncology
Resources
Bone Marrow Transplant list (BMT-Talk)
E-mail list for those who have had or are facing
Bone Marrow Transplants (BMT) or Peripheral Stem Cell Transplants (PSCT
or PSCR). To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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none (or add a dash if your mail program requires it)
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subscribe bmt-talk your first and last name
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If you have a signature, delete it.
You can also use the ACOR web interface for the BMT-TALK list.
Laurel
Simmon's BMT-Talk Homepage .
Alone Together: Cancer Patients
and Survivors Find Treatment -- and Support -- Online. It Can Make All
the Difference, by Laura Landro (a leukemia and BMT survivor) from
the October 19, 1998 edition of the Wall Street Journal. This article
is largely about BMT-Talk and is reprinted with the kind permission of
the Wall Street Journal.
Cancer
Online e-mail list for all Cancers. To subscribe:
| | e-mail: |
listservlistserv.acor.org
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none (or add a dash if your mail program requires it)
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subscribe cancer your first and last name
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If you have a signature, delete it.
You can also use the ACOR web interface for the CANCER list.
Chronic Lymphocytic Leukemia
Online e-mail list for Chronic Lymphocytic Leukemia. To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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subscribe cll your first and last name
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If you have a signature, delete it.
You can also use the ACOR web
interface for the CLL list.
Also see the CLL Resources page from
GrannyBarb and Art's Leukemia Links.
Chronic Myelogenous Leukemia
Asian CML support Group
To subscribe go to their
home page on Yahoo
ACOR's CML list
Online e-mail list for Chronic Myelogenous Leukemia. To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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subscribe CML your first and last name
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If you have a signature, delete it.
You can also use the ACOR web
interface for the CML list .
Also see the The
CML Resources page from GrannyBarb and Art's Leukemia Links
.
Cutaneous T-Cell Lymphoma, Mycosis Fungoides
Online e-mail list for Cutaneous T-Cell Lymphoma, Mycosis Fungoides and related diseases. To subscribe:
| | e-mail: |
listserv@home.ease.lsoft.com
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none (or add a dash if your mail program requires it)
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subscribe CTCL-MF your first and last name
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If you have a signature, delete it.
You can also use the ACOR web interface for the CTCL list.
Graft-vs.-Host Disease
Online e-mail list for Graft-vs.-Host Disease. To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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none (or add a dash if your mail program requires it)
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subscribe GVHD your first and last name
|
If you have a signature, delete it.
You can also use the ACOR web interface
for the GVHD list.
Also see the GVHD
Resources page from GrannyBarb and Art's Leukemia Links.
Hairy Cell Leukemia
Online e-mail list for Hairy Cell Leukemia. To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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subscribe HAIRY-CELL your first and last name
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If you have a signature, delete it.
You can also use the ACOR web
interface for the HCL list .
Also see the HCL Resources page from GrannyBarb and
Art's Leukemia Links.
Hematological Cancers (Hem-Onc)
Online e-mail list for all hematological cancers. HEM-ONC now mostly
contains messages with links to articles and abstracts about
hematological cancer diagnosis and treatment. See the lists for
specific diseases. To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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| | message: |
subscribe hem-onc your first and last name
|
If you have a signature, delete it.
You can also use the ACOR web
interface for the HEM-ONC list.
Hodgkin's Disease
ACOR list for information and support for patients and caregivers and
medical professionals with Hodgkin's Disease..
To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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| | message: |
subscribe hodgkins your first and last name
|
If you have a signature, delete it.
You can also use the ACOR web
interface for the Hodgkin's disease list.
Mantle Cell Lymphoma
ACOR list for information and support for patients and caregivers and
medical professionals with Mantle Cell Lymphoma.
To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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subscribe mantlecellyour first and last name
|
If you have a signature, delete it.
You can also use the ACOR web
interface for the Mantle Cell Lymphoma list.
Multiple Myeloma
ACOR list for information and support for patients and caregivers and
medical professionals with Multiple Myeloma. To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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| | message: |
subscribe myelomayour first and last name
|
If you have a signature, delete it.
You can also use the ACOR web
interface for the Multiple Myeloma list.
Myeloproliferative Disorders (MPD-Net)
Online e-mail list for Myeloproliferative Disorders
including: polycythemia vera, essential thrombocythemia or essential
thrombocytosis, agnogenic myeloid metaplasia and/or myeloid metaplasia,
myelofibrosis, and/or chronic myelogenous leukemia. To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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| | message: |
subscribe mpd-net your first and last name
|
If you have a signature, delete it.
You can also use the ACOR web
interface for the MPD-NET list.
See also the MPD
Homepage, which has information on MPD and links to other MPD
Resources.
Non-Hodgkins Lymphoma
ACOR's NHL list
ACOR list for information and support for patients and caregivers and
medical professionals with Non Hodgkin's Lymphoma.
To subscribe:
| | e-mail: |
listserv@listserv.acor.org
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| | subject: |
none (or add a dash if your mail program requires it)
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| | message: |
subscribe nhl your first and last name
|
If you have a signature, delete it.
You can also use the ACOR web interface
for the NHL list.
NHL List
The NHL list is for Non-Hodgkin's lymphoma patients
and care givers alike. The purpose is to provide support, caring,
information about lymphoma, and living with this disease. Discussions
cover the full range of standard treatments, clinical trials, and
technological advances in the treatment of NHL. The focus is on modern
scientifically based medicine but discussions occasionally include
alternative and complementary treatments. To subscribe go to the NHL group page on
Yahoo.
Caring Family Lists
Four more excellent support lists of which you
should be aware are:
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SICKKIDS a moderated list (with adult supervision) for
children under 18 who have serious illnesses,
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CARINGKIDS a moderated list (with adult supervision) for
children under 18 who have parents and/or siblings with severe
illnesses, and
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CARINGPARENTS for parents with serious illnesses or those
who have children with serious illnesses. Visit the
Caring
Parents Web Page .
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FACING AHEAD for caretakers who have lost or are about to
lose a loved one.
| | e-mail: |
listserv@maelstrom.stjohns.edu
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| | subject: |
none (or add a dash if your mail program requires it)
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subscribe sickkids your first and last name OR
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subscribe caringkids your first and last name OR
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subscribe caringparents your first and last name
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subscribe facing-ahead your first and last name
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If you have a signature, delete it.
(Please notice that most of the list names are written as single
words)
WARMNET
A cancer support dialogue courtsey of the ANDERSON NETWORK, M D
ANDERSON CANCER CENTER, Houston, TX. You can subscribe here or by:
If you have a signature, delete it.
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