• Helpful Organizations
  
• Clinical Trial Info
  
• Reading: Online Journals/Publications
  
• Cancer Centers

• The Alana Dung Foundation was established by Stephen and Adelia Dung, when their daughter Alana was diagnosed with AML at the age of 1.

• The American Cancer Society .

• American Medical Association Web Page provides medical resources and physician selection.

• The R.A. Bloch Cancer Foundation, was founded by Richard Bloch, co-founder and honorary chairman of the board of H&R Block, Inc. He was diagnosed with "terminal" lung cancer in 1978 and now devotes his life to helping others stricken with cancer. There is a lot of inspirational messages on this site, include the book: Fighting Cancer, A step-by-step guide to helping yourself fight cancer .

• Canadian Cancer Society.

• Cancer Care provides assistance to people with any type of cancer, at any stage of illness. All of Cancer Care's services are free of charge.

• CandleLighters Childhood Cancer Foundation of the USA a resource for families of young cancer survivors.

• Candlelighters Childhood Cancer Family alliance is a child centered, non-profit group including families, community workers, and medical professionals out of Houston, Texas.

• Candlelighters Childhood Cancer Foundation of Canada.

• Chemo Care is a program of the Scott Hamilton CARES Initiative (the Cancer Alliance for Research Education and Survivorship) and the Cleveland Clinic and provides information for cancer patients and their families, caregivers and friends about chemotherapy drugs, their uses, side effects and more.

• Fundació Internacional Josep Carreras.

• The Children's Organ Transplant association is a non-profit organization that assists in raising funds for individuals needing organ transplant (including bone marrow transplants). It provides staff assistance, fund raising advice and support, and 501(c)(3) not-for-profit status to local campaigns, making tax-deductible contributions possible.

• The Childhood Leukemia Foundation, dedicated to addressing the psychological effects of cancer, especially Leukemia on children.

• The Children's Leukemia Foundation of Michigan, serves adults and children in Michigan with malignant, or potentially malignant, disorders of the blood, lymphatic system and bone marrow. These include leukemia, Hodgkin's disease, non-Hodgkin's lymphoma and multiple myeloma. CLF provides peer support networks, a library of literature about hematologic diseases, a recreation program and sponsers some research.

• Children With Leukemia Trust London, UK.

• Families of Children with Cancer in Toronto, CANADA --for those whose children have been treated at the Toronto Hospital for Sick Children .

• Consumer's Guides for Buying and Keeping Insurance for each state in the USa. Guides covering information dealing with the Health Insurance Portability and Accountability Act (HIPAA), also known as Kassebaum-Kennedy.

• The Jeffrey Katz Bone Marrow Transplant Fund For Children, founded in 1988, it is the only organization in the United States that specifically raises money for children who BMTs. This small, all-volunteer charity, under the auspices of the Southern California Children's Cancer Services and associated with the Los Angeles Ronald McDonald House, has granted more than $700,000 to families facing BMTs.

• Leukaemia Busters out of Southampton General Hospital in the United Kingdom. The charity raises money to fund research work in The Simon Flavell Leukaemia Research Unit.

• Leukaemia CARE was formed as The Leukaemia Association in 1967 by parents of children with leukemia. This charitable organazition in England provides support for families with children or adults who have leukemia.

• Leukemia & Lymphoma Society of america (formerly the Leukemia Society of America) . Some pages having to do with LSA:
  • Houston Police Department Bike Relay Team is a group of Houston Police Officers who donate their vacation time to raise money for the Leukemia and Lymphoma Society of America. They have raised over $2,000,000 over the past 17 years. (Their site is not part of the Leukemia and Lymphoma Society of America site.)

• The Leukemia Research Foundation, a Chicago, Illinois area organization, their mission is to conquer leukemia by funding research into the causes and cures of the disease, and to enrich the quality of life by those touched by leukemia.

• Lion's Lyfeline Leukaemia Fund, is a fund dedicated to helping theneedy patients pay for the treatment of leukaemia and allied illnesses. It is under the umbrella of the Lion's Club of Kuala Lumpur, Malaysia.

• The Make-a-Wish Foundation of America , whose mission is "to ensure that wishes are granted to children in the United States with life-threatening medical conditions creating the probability the children will not survive beyond their 18th year."

• The Max Foundation, named after Max Rivarola, from Buenos Aires, Argentina. In 1988 at the age of 14, he was diagnosed with CML, Chronic Myelogenous Leukemia. He passed away in 1991 at the age of 17. The purpose of The Max Foundation is to provide a forum for information, discussion and support to help children with Leukemia and their families from all over Latin America. La fundacion Max, es llamada asi en nombre de Max Rivarola, nacido en Buenos Aires, Argentina. En 1988, a los 14 a=F1os, fue diagnosticado con leucemia mieloide cronica. Fallecio en 1991 a la edad de 17 a=F1os. El proposito de la fundacion Max es proveer de un centro de informacion, debate y ayuda emocional, a ni=F1os con leucemia y sus familias en toda Latinoamerica.

• National Childhood Cancer Foundation a resource for families of young cancer survivors. is a non-profit organization which supports pediatric cancer treatment and research projects at over 115 of the most prestigious pediatric medical institutions in the U.S., Canada and Australia. This network of 2800 pediatric cancer specialists is called the Children's Cancer Group (CCG) .

• The National Transplant Assistance Fund (NTAF) is a not-for-profit organization headquartered in Bryn Mawr, Pennsylvania, U.S.A, serving organ and tissue transplant patients, their families. They provide educational information, fund-raising expertise for patients raising money for transplants, and financial support to patients through medical assistance grants.

• The Oncology Nursing Society (ONS) is a national organization of more than 25,000 registered nurses and other healthcare professionals dedicated to excellence in patient care, teaching, research, administration and education in the field of oncology. Additional information for members and patients from the ONS

• Outlook is supported by the University of Wisconsin. Its focus is to address the needs of survivors of childhood cancer and their families, by providing information on Insurance and Financial Information, Health Issues of childhood cancer survivors, School and Job Issues facing survivors as well as the personal experiences of other survivors.

• The Patient AdvocateFoundation is a non-profit organization whose purpose is to provide patient education in managed care and insurance issues, to providing legal counseling related to, job discrimination issues and insurance denials of coverage and informing cancer patients about legislative issues that effect them.

Articles on Clinical Trials

• Understanding the Clinical Trial System from Steve Dunn's Cancer Guide. Steve is a long time survivor of "terminal" kidney cancer who is living today because of a clinical trial. His site is highly recommended reading for anyone considering a clinical trial.

• Culture Clash Impeding Cooperation Of Managed-Care Organizations In Clinical TrialsBottom Line , June 24, 1996, Myrna E. Watanabe, from The Scientist (registration is required by free).

• The NationalCancer Institute Cancer Trials website. It includes information about what a trial is and how to select one that is right for you. You can also get to the searchable database of clinical trials.
  

Listings of Clinical Trials

We have divided the listings into sites that have listings at many centers -- these sites may be commercial, governmental or organizationsof several institutions, and sites that have listings at single institutions.

Trials at Multiple Centers

• Acurian lists clinical trials for many conditions, including leukemia, lymphoma and multiple myeloma.

• CenterWatch Clinical Trials Listing Service Sign up for e-mail notices of new trials in your cancer area of interest.

• National Cancer Institute Clinical Trial Protocol Search Engine a comprehensive list of Clinical Trials including International ones. Search by diagnosis, trial phase, modality, new drugs, and geographic location. There is a patient version that searches the same database, but provides simplified overviews of the trial with links to the full abstract.

• National Cancer Institute of Canada Clinical Trials Group.

• Clinical trials from Southwest Oncology Group.

• Clinical Trials Help from The Coalition of National Cancer Cooperative Groups, Inc provides information on clinical trials and listing of clinical trials available through members of The Coalition of National Cancer Cooperative Groups.
  

Trials at Individual Centers

• Dana-Farber/Partners CancerCare Protocol Database, search for a centralized listing of clinical trials in cancer and hematology that are currently available at the Dana-Farber Cancer Institute (DFCI) and the founding members of Partners HealthCare (PHC): Brigham and Women's Hospital (BWH) and Massachusetts General Hospital (MGH).

• Clinical Trials at the Sidney Kimmel Cancer Center, San Diego, California.

• Leukaemia Busters out of The Simon Flavell Leukaemia Research Unit, Southampton General Hospital , United Kingdom. This site has excellent coverage of some new and exciting leukemia clinical trials.

• Clinical Trials from the Divsion of Oncology of stanford University Medical Center, California.

• Clinical Trials from the Cancer Center of the University of California at San Francisco. .

• ClinicalTrials from University of Southern California Norris Comprehensive Cancer Center.

• The University of Texas Office of Protocol Research, Houston, TX. Provides information about current clinical research studies at M.D. Anderson. The database of clinical trials is updated weekly.

• Clinical Trials of bone marrow transplants for leukemia and other diseases using Chimeric Therapies, Inc. method of processing bone marrow to reduce graft-vs.-host disease.

• Compassionate Use Trials of Cam511 (Campath-IH) A humanized monoclonal antibody for those whose leukemic cells express CD 52 found in most lymphocytes. These trials are for those with CLL refractory to Fludara or with PLL who have failed any treatment.
  

Amedeo, a guide to the medical literature. Lets you sign up for e-mail table of contents of many medical journals and view abstracts from them. There are pages targetted to Leukemia and Bone Marrow Transplants as well as other conditions.

Oncology Journals - Guide to Internet Resources for Cancer, from Guide to Internet Resources for Cancer by Simon Cotterill's of the Department of Child Health, University of Newcastle upon Tyne, UK . This page lists the home page of more then 100 cancer related journals. The journals are listed alphabetically or by impact factor.

• Acta Haematologica.

• american Medical Association - Scientific Publications page. Provides links to the Journal of the American Medical Association (AMA) Homepage , and to the Archives of Internal Medicine. The table of contents, many abstracts and occasional full articles are available.

• ASCO Online from the The American Society of Clinical Oncology is an interactive resource for oncology professionals and cancer patients, including access to abstracts of its annual meetings, (1997 through 2000).

• Biology of Blood and Marrow Transplantation, The Official Journal of the American Society for Blood and Marrow Transplantation. Full text of most if not all articles are available.

• Blood, The Journal of the American Hematological Society

• Blood Cells, Molecules and Diseases

• Bone Marrow Transplantation, published by Nature Publishing Group and affiliated with the European Group for Blood and Marrow Transplantation. Provides table of contents and article abstracts. Registration required, a subscription fee is required for access to full text articles. A peer-reviewed journal that is published monthly.

• The British Journal of Haematology published by Blackwell Science. Abstracts for original articles are available, but the full article requires a payment.

• British Journal of Cancer is the official journal of the Cancer Research Campaign (a British cancer charity). This site only offers tables of contents of recent journals. Abstracts are not available here.

• British Medical Journal.

• Ca - A Cancer Journal for Clinicians a peer-reviewed journal published for the American Cancer Society by Lippincott-Raven Publishers. Its mission is to act as a professional education vehicle for the American Cancer Society , providing primary care physicians with up-to-date information on (1) all aspects of cancer diagnosis, treatment, and prevention; and (2) the Society's related programs, guidelines, statements, and meetings.

• Canadian Medical association Journals .

• Cancer the American Cancer Society journal. Unfortunately there will only be online access to the full-text articles for free (with registration) until the end of 1997. After that only abstracts and tables of contents will be free, full articles will require a subscription.

• Cancer Control: Journal of the Moffitt Cancer Center from Medscape.

• The Cancer Journal.

• Cellular Immunology.

• Clinical & Laboratory Haematology published by Blackwell Science. This site only offers tables of contents of recent journals. Abstracts are not available here.

• The Electronic Journal of Oncology, an exclusively electronic peer-reviewed journal. Abstracts and full text articles are available at this site.

• European Journal of Cancer  Official Journal of the European Organization for Research and Treatment of Cancer (EORTC), the European School of Oncology (ESO), the European Association for Cancer Research (EACR), and the Federation of European Cancer Societies (FECS).

• Experimental Hematology.

• Hum-Molgen-Journals.

• International Journalof Cancer a publication of the International Union Against Cancer.

• Journal of Clinical Oncology

• Journal of the National Cancer Institute.

• Journals of Histochemistry and Cytochemistry Online.

• Haematologicaon Internet the Official Journal of the Italian Society of Hematology, the Italian Society of Experimental Hematology and the Spanish Association of Hematology and Hemotherapy. Provides article abstracts for free, full text articles are available for subscribers to the print edition or for a registration fee.

• Lancet Online offers full text summaries of selected articles from this premiere medical journal.=

• Leukemia: Normal and Malignant Hemopoiesis, published by Nature Publishing Group. It covers all aspects of the research and treatment of leukemia and related diseases. Includes articles on oncogenes, growth factors, stem cells, gene transfer chromosomes, cell cycle, receptors, cell and membrane markers. It is the official journal of the Leukaemia Research Foundation, UK. Provides table of contents and article abstracts. Registration required, a subscription fee is required for access to full text articles. A peer-reviewed journal that is published monthly.

• MayoClinic Proceedings

• Nature the International weekly journal of science and Nature Medicine, the monthly international journal of biomedical research, both are published by Macmillan Magazines Ltd.

• New England Journal of Medicine.

• Science, the Journal of the American Association for the Advancement of Science.

• If you can not find the journal you are looking for, try the Medical Journal Finder, which listsmany many medical journals in both English and German (Deutsch).

  
  

  

  
  

  [ Index ]

• Bloodline from Long Island Jewish Hospital.

• The Leukemia Insights Newsletter is a quarterly publication primarily intended for physicians, published by the Leukemia department of M.D. Anderson. Some issues include:
  • Initial Leukemia Insights Newsletter, Spring, 1995 Vol.1 No.1.

  • Studies in Patients with Chronic Myelogenous Leukemia, Summer, 1995 Vol.1 No.2.

  • Salvage Studies in acute Myelogenous Leukemia , Winter, 1995 Vol.1 no.3.

  • Chronic Lymphocytic Leukemia, Spring, 1996 Vol.1 No.4.

  • Biotherapy of Cancer and Hematologic Conditions, Fall, 1996 Vol. 1 No.5.

  • Update of Innovative approaches in Leukemia , Winter, 1997, Vol. 2,No. 1.
    
  
  
• Leukemia Research.

• MedWeb, Electronic Journals, and Newsletters.

• Proceedings of theNational academy of Sciences .

• Selected abstracts about Leukemia , University of Calgary, CANADA.

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