• Resources for Myelodysplasia or Myelodysplastic Syndromes
  
• Adult Myelodysplasia Patient Stories
  
• In Loving Memory of those who passed away from Myelodysplasia.
  
• Information on subscribing to the Aplastic Anemia and Myleodysplastic Syndrome support list (AA-MDS-Talk) mailing list
  
• Resources for Myelproliferative Disorders (MPD)
  
• Information on subscribing to the Myeloproliferative Disorders (MPD-Net) mailing list
• MPD Patient Stories
  
• Information on subscribing to the BMT-Talk mailing list
  

MDS Include:

• Refractory Anemia
• Refractory Anemia with Sideroblasts
• Refractory Anemia with Excess Blasts
• Chronic Myelomonocytic Leukemia
• Refractory Anemia with Excess Blasts in Transformation
• Preleukemia including Aplastic Anemia caused by environmental exposure
• PH negative Chronic Myelocytic Leukemia

Myelodysplastic Syndromes (MDS) Resources

• The NCI PDQ patient statement on Myelodysplastic Syndromes (or myelodysplasia).
  

• The NCI PDQ physician statement on Myelodysplastic Syndromes (or myelodysplasia) .
  

• Bone Marrow Transplants for Myelodysplastic Syndrome from BMT Newsletter, September 1995, Issue #31.

• Myelodysplastic Syndromes Basic Explanations (PDF) from the Aplastic Anemia and MDS International Foundation (formerly The Aplastic Anemia Foundation of America). This document is in a PDF document which you can download and view . You will need Adobe Acrobat Reader to view these documents. If you do not have it you can download the Adobe Acrobat Reader.

• Myelodysplastic Syndromes, by Moshe Talpaz, et. al. This is Continuing Medical Education (CME) course from Medscape, intended for doctors. It provides an overview of the Myelodysplastic Syndromes, their diagnosis and treatment.

• Myelodysplastic Syndromes in the Elderly by Hussain I. Saba, from Cancer Control: Journal of the Moffitt Cancer Center, Vol 8, No. 1, 2001. This article is a review of the diagnosis, prognosis and treatment of the Myelodysplastic Syndromes, not just in all adults, not just the elderly.

• Myelodysplastic syndrome by Emmanuel C Besa, MD and Ulrich Woermann, MD, from the eMedicine World Medicine Library. This is a very technical review of the symptoms, causes, diagnosis and treatment of adult MDS.

• Myelodysplasia by Sharon M Castellino, MD, and Carmen Arkansas, MD from the eMedicine World Medicine Library. This is a very technical review of the symptoms, causes, diagnosis and treatment of pediatric MDS .
  

• Myelodysplastic Syndromes by Alan F. List, James Vardiman, Jean-Pierre J. Issa and Theo M. DeWitte, from Hematology , American Society of Hematology Education Program Book , 2004. Increased understanding of the natural history and biology of MDS has lead to the development of treatments and better understanding of the progosis for the different types of MDS. This article provides an overview of recent developments in the characterization of MDS and how these findings have lead to new promising treatments.

MPD includes:

• Polycythemia Vera
• Chronic Myelogenous Leukemia (PH positive)
• Agnogenic Myeloid Metaplasia (Myelofibrosis)
• Essential Thrombocythemia

MPD Resources

• The NCI PDQ patient statement on Myeloproliferative Disorders

• The NCI PDQ physician statement on Myeloproliferative Disorders

• Home Page of the Myeloproliferative Disorders Institute. The following FAQs are from the Myeloproliferative Disorders Institute:
  • Chronic Myelogenous Leukemia Frequently Asked Questions

  • Essential Thrombocythemia Frequently Asked Questions

  • Myelofibrosis Frequently Asked Questions

  • Polycythemia Vera Frequently Asked Questions

• Below you will find reviews on the Myeloproliferative Diseases from eMedicine World Medicine Library. These reviews are very technical and cover the symptoms, causes, diagnosis and treatment of the MPDs.

  • Myeloproliferative Disease by Haleem Rasool, MD, and Donald Doll, MD.

  • Agnogenic Myeloid Metaplasia with Myelofibrosis by Asheesh Lal, MBBS

  • Chronic Myelogenous Leukemia by Emmanuel C Besa, MD and Ulrich Woermann, MD.

  • Essential thrombocytosis, by Asheesh Lal, MBBS.

  • Polycythemia Vera by Emmanuel C Besa, MD and Ulrich Woermann, MD.

  • Myelofibrosis by J Martin Johnston, MD, this article is on pediatric Myelofibrosis .

• The Center for the Chronic Myeloproliferative Disorders of Johns Hopkins Oncology Center.

• The first State Of The Science (SOTS) meeting on the Myeloproliferative Disorders (MPDs) and Mastocytosis was held April 29, 2002. It yielded recommendations for further research and how to advance the research into these diseases. This site includes lecture notes and slides for the various sessions.

• Chronic Myelogenous Leukemia and Myeloproliferative Disease by Stephen O'Brien, Ayalew Tefferi and Peter Valent, Hematology, American Society of Hematology Education Program Book, 2004. Reviews the latest data on the use of imatinib (Gleevec) in CML, including response data and resistance and its use in combinaton with other drugs. The biology and treatment of myelofibrosis and the classificatoin of mast cell proliferative disorders are also reviewed.

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