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MDS and MPD Patient Stories
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| Contents |  |

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| Adult Survivors of Myelodysplasia |  |

- Sharon
Bardach Blumenstein was diagnosed with MDS, Refractory
anemia, with excess blasts, in August, 1999. She and her family
tried to find a donor in the registries and managed to add
several thousands donors to the registries. However she could
not find a donor and had a cord blood transplant at the University
of Colorado in March, 2000.
- Kendra
Marsh's Myelodysplasia Battle by the founder of BMT Support Online.
- Brian Zikmund-Fisher
was diagnosed with Myelodysplastic Syndrome (RA-MDS) in February,
1998. He had a BMT with a matched unrelated donor in May, 1999 at
the Fred Hutchinson Cancer Research
Center. Brian has established a fund to pay for DR Typing with
The HLA Registry
Foundation. Brian's wife Naomi has written a book Across the
Chasm which chronicles her day-to-day life, as she
struggled to care for Brian, raise a young child and maintain her
sanity. With humor and candor, she offers a vivid picture of the
emotions and challenges caregivers face. Across the
Chasm is published by the BMT InfoNet.
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| Childhood Survivors of Myelodysplasia |
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| In Memory of Those Who Passed Away from
Myelodysplasia |  |

Many of the pages and stories of people who have passed away no longer
exist. Here is a listing of some people who have passed away from
Myelodysplasia.
- The
Waystation, John Wentworth's tribute to his wife, Christine
Raimondi Wentworth, who passed away July 31, 1998 after a BMT
for myelodysplasia, caused by previous cancer treatment.
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| Patients with a MPD |  |

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