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CML Survivors' Stories
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Contents |  | 
 |  | | Adult Survivors of Chronic Myelogenous Leukemia (CML) |  | 
- Victoria Bartling was diagnosed with CML in 2000 at the age 47. She entered the IRIS trial comparig Gleevec and Interferon, starting on Interferon, but ending up on Gleevec. Unfortunately she was one of a very few patients who experience liver problems on Gleevec and she had a bone marrow transplant with her sister Cathy as the donor (one of her two sisters who matched Victoria). Victoria lives in the Philadelphia area. Victoria is a prolific quilter and made quite a few beautiful quilts chronicling her battle with leukemia.
- Sushmita Bhadra lives in India and was diagnosed with CML in 1998. She had to raise funds to pay for an autologous BMT which happened in April, 2000.
- Tim Chennell's Bone Marrow Transplant Page. Tim had a BMT in 1985!! for CML at the University of Minnesota.
- Scott Duncan's Leukaemia Help Site . His wife Kathryn was diagnosed with Chronic Myeloid Leukaemia in June, 1997.
- Bob Farmer's Cancer SUXS page. Bob has CML which was treated with a BMT in 1993. This site is a sounding board for the issues related to living and working in Kitsap County. Bob was also featured on the cover of the winter 1999 issue of Northwest Health Magazine (a publication of Group Health Cooperative) which included an article on Bob, titled Life after Cancer.
- The Man with The Drive is the story of Jay Feinberg who was diagnosed in June, 1991 with CML at the age of 22. He and his family added more the 50,000 new donors from all over the world to bone marrow registries while looking for a donor for him. Eventually he had a BMT at the Fred Hutchinson Cancer Research Center (FHCRC) in Seattle in 1995. Jay is the founder of the Gift of Life Foundation a Donor registry. This article was originally printed in the Palm Beach Post on September 6, 2000, and is reprinted with the kind permission of the Palm Beach Post.
- Mark Frazer lives in Adelaide, Australia with his wife Dawn and daughter Michaela. He was diagnosed with CML in November, 2000 and is having a bone marrow transplant in April, 2001.
- Doug Klaassen was diagnosed with CML in January, 1999. He will have a BMT at the Fred Hutchinson Cancer Research Center (FHCRC) in Seattle in August, 1999, with his brother Mel as the donor. More then a quarter of a million dollars have been raised to cover the costs of Doug's treatment.
- Alan Kuo has CML and finally found a donor. He had a BMT in December, 1998. There is quite a lot of information about becoming a donor on his page. Alan is researcher who studies the opportunistic infections of immuno-suppressed patients, including bone marrow recipients.
- A Survivor's Tale: How a Wall Street Journal reporter confronted a potentially fatal cancer head-on, by Laura Landro a senior editor at the Wall Street Journal. This article originally ran in the Wall Street Journal on October 24, 1996 and is reprinted with the kind permission of the Wall Street Journal. Laura Landro has also written a book based on the article and her experience, Survivor: Taking Control of Your Fight Against Cancer (from amazon.com where the book can be ordered). Other articles on or about Laura Landro, her fight with CML and her book.
- Kirsten McKnight's Homepage. Kristen was diagnosed with CML in 1993 at the age of 23. She had an unrelated BMT in May, 1996.
- Suzan McNamara web page describing her battle with CML since diagnosis in March, 1998. Suzan is currently on Interferon and has her siblings are not matches for a BMT. She is also using a large number of alternative therapies.
- Paul Mothena was diagnosed with CML in August, 1996. He had a BMT on August 25, 1998 with his brother as the donor donor at Palmetto Richland Memorial Hospital in Columbia, SC. His chronology contains entries made from before transplant to the present (more then 6 months after the BMT). All test show 100% donor blood, and all counts are normal. He had aGVHD and adenovirus in the hospital.
- Bryce Onaran was diagnosed with CML in August 2001. He is currently on Gleevec, but is looking for a donor in case he needs a BMT. His site has lots of information on becoming a donor and about donor drives.
- Karie Partington is a journalist with the Naples Daily News. This article is from the April 11, 1999 edition and chronicles her BMT for CML at the Fred Hutchinson Cancer Research Center (FHCRC) in early 1999. Karie can be reached via e-mail at kjpartington@naplesnews.com.
- He's back, with a dream, about Percy Randle who has suffered from spina bifida since birth and was diagnosed with CML in 1981. He had a BMT in 1983 at the Fred Hutchinson Cancer Research Center (FHCRC). From 1986 until early 1998, Percy worked full time at FHCRC as a chaplain, until he had more complications from his spina bifida. This is a great article from the FHCRC Center News.
- Steven Schmidt was diagnosed with CML in September, 1997.
- Surviving Leukemia...One Man's Cord Blood Miracle . Steve Sprague was diagnosed with CML in 1995 when he was 47 years old. In those pre-Gleevec days, the standard chemo for leukemia failed after only 17 months when Steve went into blast crisis. An only child and unable to find a matched unrelated donor for transplant, he became one of the first to participate in a clinical trial for end-stage adult CMLers using matching stem cells obtained from umbilical cord blood (UCB) and expanded ex vivo (in the lab). Now a 4+ year survivor, Steve volunteers his time as a cord blood advocate and has published a short story about his unique transplant experience. His tale may be helpful to patients, care-givers and even prospective parents interested in donating their infant's umbilical cord blood. To obtain a complimentary copy or for more information about UCB, email your request to spraguecml@AOL.COM. Please include your postal mailing address
- Dave Schramm lives in Sarasota, Florida and is a computer programmer for a major accounting firm. He was diagnosed with CML in July, 1998. He had a bone marrow transplant at the Fred Hutchinson Cancer Research Center (FHCRC) in February, 1999 from an unrelated donor.
- Leukemia survivor Lloyd Scott's story of his trip to the South Pole to raise money for leukemia research, and to raise the profile of the Anthony Nolan Bone Marrow Trust .
- Jack Smedley was diagnosed with CML in 1983 and had a bone marrow transplant at the Fred Hutchinson Cancer Research Center, his son was the donor. He has written a book called The Journey Back: A Survivor's Guide to Leukemia
- Stephen Soukup lives in California. He was diagnosed with CML in March, 1999 and had a Matched Unrelated Donor (MUD) BMT in February, 2000 at City of Hope BMT.
- Graham Stewart lives Lancashire, North West England. He was diagnosed with CML in December, 1999 and while have a BMT in May, 2000 with his sister as the donor.
- Cindy Strouse lives in Grapevine, Texas. She was diagnosed with CML in May, 1995 and is raising for a bone marrow transplant from an unrelated donor.
- Where There Is Love....There is Life - Gandhi, Bob Tolden's web page. Bob has CML and is looking for a donor, he is promoting a National Multi-Cultural Bone Marrow Drive.
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Childhood Survivors of Chronic Myelogenous
Leukemia (CML) |  | 
-
Amy Katz is a 12
year old who lives in Pittsburgh, Pennslyvania. She was
diagnosed with CML in 2003 and is searching for a donor
for a stem cell transplant.
 |  | | In Memory of Those Who Passed Away from Chronic Myelogenous Leukemia (CML) |  | 
- Ed Crandall has CML and has made every moment of his life count by becomming a fundraiser for the Leukemia Society.
- Jeff "Squeeky" Medlen , the caddie of PGA Tour star Nick Price, passed away June 16, 1997 after a battle with CML, including two bone marrow transplants.
- Vrushali Ranadive fought a valiant battle against CML. She, too, was seeking a donor for a bone marrow transplant when she died.
- Kylie Rosset was diagnosed Juvenile CML in November 1998 at the age of three years. She had a BMT on January 29, 1999, she passed away on April 18, 1999 from complications of her treatment.
- amy Senecal was a 13 year old who lived in San Antonio. After an unsuccessful search for an unrelated donor, she had a cord blood transplant, but passed away on March 29, 1998.
- Jack Sarfaty underwent a BMT in May, 1999 at Fred Hutchinson Cancer Research Center (FHCRC) using an unrelated donor. Jack passed away on October 22, 1999 from complications of his treatment. He was well known for sharing his knowledge and wisdom on the BMT-TALK mailing list.
- Icla Da Silva was diagnosed with CML in August, 1989 at the age of 11. She lived in Brazil. She passed away June 21, 1991 before a donor could be found. Her family has formed the Icla Da Silva Foundation to help others.
- Steve Young's page about his fight with CML. Steve passed in October, 1999.
Disclaimer
The presence of any site on this list does not
imply endorsement. Please discuss any information or treatment
options you gain from this page with your personal physician.Every
effort has been made to ensure that the links on this page are in
working order, however, the web moves rapidly, so please contact us if you find a link that is
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