Mike Dohan's, "What the CLL List Means to Me"

A member's commentary on the CLL list and what it has meant to him.

Once you have joined our list you are encouraged (if you feel like it) to send a note to the list to introduce yourself. Do include specific details about your disease or that of your loved one, if you are seeking help, so that the responses from the list can be relevant to your situation.

Please do not be reluctant to post your questions and responses. Many of us are in the same situation. Do not worry about typos or spelling. Do not let these concerns keep you from the help that the mailing list can provide.

ARCHIVES and FILES

listserv@listserv.acor.org
Message : Index CLL

Archives are available on the WWW at Listserv.acor.org

email : 

or they may be retrieved one full month at a time by email to

listserv@listserv.acor.org

o Acronyms

o Glossary


o CLL FAQ





MESSAGING ETIQUETTE

PROBLEMS

If you have any problems, don't be frustrated. Just write your friendly list owner (note the Address!) and you will get help:

Address:

CLL-request@listserv.acor.org


Subject - Short description of your problem
Message - Detailed description of your problem



MESSAGING ETIQUETTE

o When you 'reply' to a message, make sure you look at the header and reply to whomever you really want to reach. - It is easy, accidentally, to reply to the list when you meant to reply to an individual - and this can be quite embarrassing at times, depending on your message.
. o Be brief; reread before sending; cut and paste so you quote just that part of an initial message needed for clarity when replying.
o If you are using the digest please

CHANGE THE SUBJECT HEADING
from: CLL Digest-Date
to: disease, subject, or individual being replied to
In that way, your response will be associated with the original post that appeared onCLLand archives searching will be facilitated. This should also make it easier for those who prefer to concentrate on only one disease.

o Do try to make the subject line succinct and meaningful. It certainly helps people make selections about which messages to read first.
o Also, please cut and past the key parts of the message to which you are responding, instead of including the entire thing. This keeps the digest shorter and saves money for those who pay by message length.
o No commercial and/or advertising postings are permitted. In addition, DO NOT POST any questionnaire that has not been approved by the listowners.
o Rude or inappropriate messages will not be tolerated, and could lead to removal of your subscription.
o If you have a conflict with anyone, settle it by private email. If you are upset or angry, wait a few days before answering.
o Humor does not carry over well in email, at times. Many people manage this by adding a smiley face at the end of a line. They can be in many forms, but one typical one is :-. Under no circumstances is anyone permitted to post unrelated humor to the list.
o If your signature is in a file, try to keep it reasonably short. Recommended length is no more than 4 lines.


Your List Managers:

Barbara Lackritz	email address: In Loving Memory
Tony Ioannides	email address: antoine.ioannides@btinternet.com
Paul Maguire	email address: p.maguire@ntlworld.com
Gilles Frydman	email address: gfrydman@acor.org


o Please configure your email client appropriately. Turn off fancy fonts, "smart quotes", and other word processor features. Use hard line breaks that keep your lines shorter than 70-75 characters. Be careful if you prepare your message with a word processor and then paste it into an email client; the email client may interpret your paragraph as a single long line. Do send your messages in plain text. Html messages also not acceptable.




Helpful Sites for Research

DISCLAIMERS

Information posted to this mailing list is for educational purposes only and is not intended to replace or give any medical advice or treatments. Any information pertaining to your health should be reviewed with your personal healthcare professional.

No liability, explicit or implied, shall be extended to the owners, maintainers, or sub-contracters of this listserv location for messages posted to the list. The owners make no assurances of the accuracy and/or the relevancy of the information posted to this list or to information referred to by messages to this list.

You may not post any copyrighted material on the list without written permission. However, you may quote messages posted to this list when you are replying to the list, as long as you indicate from whom the quote came. For any other use of messages you see on this list, you must contact the originator of the message for permission.






Helpful Sites for Research

o Mike Dohan's, "What the CLL List Means to Me"



o Grannybarb and Art's Leukemia Links



o GrannyBarb's CLL story



o GrannyBarb's CLL Resources Page



o Alexandra's Cancer Links



o CancerGuide - Steve Dunn's Page with "The Median is Not the Message" and "How to Research Your Own Cancer"




Disclaimer

The presence of any site on this list does not imply endorsement.
Please discuss any information or treatment options you gain from this page with your personal physician.Every effort has been made to ensure that the links on this page are in working order, however, the web moves rapidly, so please contact us if you find a link that is inoperable.