| Who's Who | Subscribe | Posting to List | Security | Archives/Files |
| Problems | Message Etiquette | Disclaimers | Links | CLL Page |
We invite you to become a subscriber to this unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and nonclinical issues and advances pertaining to Chronic Lymphocytic Leukemia.
It includes patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices and alternatives. The principal focus is expected to be information and reassurance for patients and loved ones.
This list is entirely free, and is run completely by volunteers.
While some of the messages will be devoted to announcements and discussions of medical advances, as well as to therapeutic treatment, both main stream and alternative; the main focus of the CLL Mailing List is intended to be a forum for patients with CLL and their loved ones to exchange experiences on coping with the disease and to gain information which is often hard to find.
The CLL List Survey done May-June, 1998. The results of a survey of people with CLL, members of the internet CLL list, provides interesting statistics about CLL and our experiences with diagnosis, treatment, and stage at diagnosis. This is the only resource of its kind on the web done by patients, for patients, using our own cll experience for data.
Photos of your ListManagers and those who post to the lists are here for you. Put the faces with the names of those from whom you hear regularly. If you wish to have your photo included, just email it as an attachment to lackritz@aol.com.
When you subscribe to CLL you join a group of about 500 or more patients, caretakers, doctors, nurses, and/or social workers who share information about diagnosis, treatment possibilities, options and alternatives. No specific medical advice will be provided for individuals. That must be discussed with one's own medical practitioner. However, suggestions for clinical trials, treatment possibilities, cancer centers, and patient experiences with each of the above, are grist for the CLL mill.
To SUBSCRIBENeed help subscribing to the list? email: CLL-request@listserv.acor.org
email:listserv@listserv.acor.org
subject: blank (If you're on AOL use a dash)
message: subscribe CLL your own first and last names
A member's commentary on the CLL list
and what it has meant to him.
Once you have joined our list you are encouraged (if you feel like it) to send a note to the list to introduce yourself. Do include specific details about your disease or that of your loved one, if you are seeking help, so that the responses from the list can be relevant to your situation.
Please do not be reluctant to post your questions and responses. Many of us are in the same situation. Do not worry about typos or spelling. Do not let these concerns keep you from the help that the mailing list can provide.
One must join (subscribe) to be able to post to the list. Only the owners of CLL can determine that you are subscribed. No one else can retrieve the list of subscribers. Only subscribers can send email to CLL and only subscribers directly receive email distributed by the CLL listserv list. However, the CLL archives are publicly accessible, so consider this when sending email to CLL. In that sense, any message posted to the list is a PUBLIC message.
Monthly archives are available from:
Archives are available on the WWW at Listserv.acor.org
email:or they may be retrieved one full month at a time by email to
listserv@listserv.acor.org
message: get CLL.Glossary ......................Terms used frequently in CLL posts
message: get CLL.ACRONYMS...............The Acronyms most often seen on our list
message: get CLL.WEBSITES ................. Short file of net sites supporting CLL.
If you have any problems, don't be frustrated. Just write your friendly list owner (note the Address!) and you will get help:
Address:
CLL-request@listserv.acor.org
Subject - Short description of your problem
Message - Detailed description of your problem
CHANGE THE SUBJECT HEADING
from: CLL Digest-Date
to: disease, subject, or individual being replied to
In that way, your response will be associated with the original post that appeared onCLLand archives searching will be facilitated. This should also make it easier for those who prefer to concentrate on only one disease.
Your List Managers:
Barbara Lackritz email address: lackritz@mvp.net
Tom McCune email address: tmccune@borg.com
Tony Ioannides email address: A2329918@INFOTRADE.CO.UK
Loren Buhle email address: buhle@carelife.com
Gilles Frydman email address: gilles@dorsai.org
Information posted to this mailing list is for educational purposes only and is not intended to replace or give any medical advice or treatments. Any information pertaining to your health should be reviewed with your personal healthcare professional.
No liability, explicit or implied, shall be extended to the owners, maintainers, or sub-contracters of this listserv location for messages posted to the list. The owners make no assurances of the accuracy and/or the relevancy of the information posted to this list or to information referred to by messages to this list.
You may not post any copyrighted material on the list without written permission. However, you may quote messages posted to this list when you are replying to the list, as long as you indicate from whom the quote came. For any other use of messages you see on this list, you must contact the originator of the message for permission.
CLL Banner created by Carol Johnson.
GrannyBarb wants to express her personal thanks for this work.
[Return to the
top of this page. ]
If you have suggestions, additions, or other links
that need to be added here, please contact:
Barbara Lackritz (alias GrannyBarb)
Copyright © 1997,1998, 1999 Barbara
Lackritz
This Page was created November 5, 1997
Most recent revision January 9, 1999