| The Testicular Cancer Resource Center |
So why are we telling you this? While we don't want you to lose confidence in your doctors, we do want you to realize that due to the relative rarity of this cancer, many doctors simply do not have the experience and expertise needed to deal with some of the complexities involved in its treatment. Only a small percentage of urologists perform a nerve sparing RPLND operation often enough to be considered experienced, let alone expert. Similarly, many oncologists are on uncertain ground administering the normal BEP protocol, let alone treating TC recurrences and advanced metastatic disease. The same can be said for the pathologists that look at the original slides after the orchiectomy. One study found that 32% of the pathology reports evaluated had errors, and 36% of those errors resulted in a change in the treatment or prognosis. In fact, in Scotland they "found that survival rates for testicular cancer at one unit were 10 per cent better than at four others". Even worse,
an EORTC Study found that among poor prognosis patients, those treated at a center that rarely sees this type of cancer had a risk of death almost twice as high as those patient treated at a center that sees a lot of this cancer. Their treatments did not work as well and they suffered from more treatment related problems. There clearly is an advantage in making sure that your doctor knows how to treat this cancer!
Because of these numbers, we are strong believers in getting the right diagnosis from the right source. This may involve getting a second opinion, and it may also mean consulting with an expert in another city (or country!) in order to verify the proper treatment. It may involve having your slides sent to an expert pathologist to verify the histology of the tumor, or it may mean travelling to have the surgery you need done by someone who does it frequently and expertly.
We have compiled the following list of experts in order to help you get the best treatment - you may already be asking "Are these doctors the ONLY ones who know how to treat testicular cancer?!" - certainly not, but these doctors have chosen testicular cancer as their specialty / area of research, and they have been specially trained to treat it. They know what to do, and they are more than willing to help you or your doctor understand the correct treatment options.
If your cancer has recurred after initial treatment, or if the initial treatment did not work, then we strongly encourage you to call one of the doctors on this list!
We hope this list helps you in your TC experience, if you have any feedback, please contact us.
Indiana University, Department of Oncology - phone 317-274-0920 for physician advice or appointments.
They usually respond within 24 hours.
Dr Patrick Loehrer
Dept of Medicine
Phone: (317) 274-0920
Fax: (317) 274-3646
Dr Steven Williams
IU Cancer Center
Phone: (317) 278-0070
Dr Richard Bihrle
Dept of Urology
Office: WD S320
Phone: (317) 630-7744
Fax: (317) 274-0174
Dr Stephen Beck
Dept of Urology
Phone: (317) 278-9272
Fax: (317) 274-3763
Indiana University, Department of Surgery
Indiana University, Department of Pathology
For pathology consults, send slides to Dr Ulbright at this address:
Clarian Pathology Laboratory
350 West 11th Street, #4010
Indianapolis, IN 46202
The slides should be accompanied by the original pathology report. IU will charge a consultation fee for this service, so include a copy of your insurance information if you want them to bill insurance directly.
Dr. Sia Daneshmand
Assistant Professor of Surgery
Section of Urologic Oncology
Division of Urology & Renal Transplantation
Oregon Health Sciences University
3181 Sam Jackson Park
Rd. L588, Portland, OR 97201-3098
Phone: (503) 494-4779
Dr Robert Motzer
Associate Chairman for Clinical Trials, Department of Medicine
Phone: (646) 422-4312
Dr Dean Bajorin
Phone: (646) 422-4333
Dr Joel Sheinfeld Dr Pramod Sogani
Vice Chairman, Department of Urology
Phone: (646) 422-4311
Dr Harry Herr
Phone: (646) 422-4411
Phone: (646) 422-4395
Dr Michael Cookson
Vanderbilt University Medical Center
Department of Urologic Oncology (TC Specific Info)
A-1302 Medical Center North
Nashville, TN 37232-2765
Appointments: 615 322-2880
Phone: (615) 322-2101
Fax: (615) 322-8990
Dr Bedford Waters
University of Tennessee Medical Center
Associate Professor, Department of Surgery
Urologic Oncology
1928 Alcoa Highway
Knoxville, TN 37920
Phone: (865) 544-9254
Fax: (865) 544-9716
Dr Marc Garnick - Oncology
Beth Israel Deaconess Medical Center
330 Brookline Avenue
Cambridge, MA 02139
Phone: (617) 667-5288
Fax: (617) 667-9919
Dr Jerome Richie
Chief, Division of Urology
Brigham and Women's Hospital / Dana-Farber Cancer Institute
Harvard Medical School
45 Francis St.
Boston, MA 02115
Phone: (617) 732-6325
Fax: (617) 566-3475
Physician Referral: 1-800-638-6294
Dr Gilbert Brodsky - Pathology
Department of Pathology and Laboratory Medicine
Harvard Vanguard Medical Associates
120 Brookline Ave
Boston, MA 02215
Phone: (617) 421-2350
Dr Eric Klein, M.D.
Head, Section of Urological Oncology, Urological Institute
Cleveland Clinic
Desk A100, 9500 Euclid Avenue
Cleveland, OH 44195
Phone: (216) 444-5591
Fax: (216) 445-9628
Dr Daniel Lin, M.D.
Assistant Professor, Department of Urology
University of Washington School of Medicine
Phone: (206) 667-1342
Fax: (206) 667-2917
Urology Clinic Number: (206) 598-4294
Dr Daniel J. Lieber
The Angeles Clinic and Research Institute
2001 Santa Monica Blvd
Suite 560W
Santa Monica, CA 90404
Phone: (310) 582-7900
Dr Mary Gospodarowicz
Professor, Department of Radiation Oncology, Department Chair and Department Head
University of Toronto
Princess Margaret Hospital
610 University Avenue
Toronto, Ontario, M5G 2M9 Canada
Phone: (416) 946-4421
Fax: (416) 946-2038
Dr Padraig Warde
Associate Professor, Department of Radiation Oncology
Princess Margaret Hospital
610 University Avenue
Toronto, Ontario, M5G 2M9 Canada
Phone: (416) 946-2122
Fax: (416) 946-4586
Dr Christian Kollmannsberger
Clinical Associate Professor of Medicine
Division of Medical Oncology
British Columbia Cancer Agency
Vancouver Cancer Center
Phone: (604) 877-6000 x2674
Fax: (604) 877-0585
Pr Stéphane Culine, M.D., Ph.D.
Department of Medicine (Oncology)
CRLC Val d'Aurelle
Parc Euromédecine
34298 - Montpellier Cedex 5
France
Phone: +33 4 67 61 31 50
Fax +33 4 67 61 30 22
Dr G.M. Mead MD FRCP Oncology
The Wessex Medical Oncology Unit
Royal South Hants Hospital
Brintons Terrace, Southhampton, S014 OYG, UK
Dr Tim Oliver MD FRCP Oncology
Medical College, The Royal London Hospital, UK.
Phone: 0171 377 7000 (Country Code 44)
Dr Bill Jones MD
Consultant Oncologist
Oncology Department, Cookridge Hospital
Hospital Lane, Leeds, LS16 6QB, UK
Phone: 0113 292 4227 (Country Code 44)
Dr M. H. Cullen BSc MD FRCP FRCR
Consultant and Honorary Reader in Medical Oncology
University Hospital Birmingham
Edgbaston, Birmingham, B15 2TH.
Phone: 0121 627 2444 (Country Code 44)
Fax: 0121 697 8428 (Country Code 44)
Dr Tim Christmas
Department of Urology
Charing Cross Hospital, London, UK
Dr David Dearnaley
Radiotherapy Section
Department of Radiotherapy and Oncology
Royal Marsden NHS Trust
Institute of Cancer Research, Sutton, Surrey, UK.
Phone: 0181-643-3271 (?) (or 0181 643 8901 extension 3271)
Phone: 0181-643-3458 (?) (or 0181 643 8901 extension 3458)
Dr John Crown
Oncologist
St Vincent's Hospital
Dublin, Ireland
Dr Nina Aass
Department of Medical Oncology and Radiotherapy
Senior Oncologist, Professor
Norwegian Radium Hospital, Montebello, Oslo, Norway
Switchboard: +47-2293 4000
Dr Pieter de Mulder
Department of Internal Medicine, Oncology
University Hospital Nijmegen, The Netherlands.
Phone: +31 024-3611111
Dr Gerit Stoter
Oncology
Rotterdam Cancer Institute (Daniel den Hoed Kliniek)
The Netherlands
Phone: +31 010-4391331
Fax: +31 010-4391003
Dr HJ Hoekstra
Division of Surgical Oncology
Groningen University Hospital
The Netherlands
Phone: +31 050-3612317
Fax: +31 050-3614873
Dr DT Sleijfer
Department of Medical Oncology
Groningen University Hospital
The Netherlands
Phone: +31 050-3612822
Dr Peter Albers
Arbeitsgemeinschaft Urologische Onkologie
Abteilung für Urologie
Universitätsklinik Bonn
Sigmund-Freud-Str.25
53105 Bonn
Phone: +49 228 287 4184 / -5231
Fax: +49 228 287 4285
Prof. Dr. Lothar Weißbach
Urologische Abteilung (Urology)
Krankenhaus Am Urban
Dieffenbachstr. 1
10967 Berlin
Phone: +49 030/697 26301
Fax: +49 030/697 26306
PD Dr. Carsten Bokemeyer
Department for Haematologie and Onkologie
Eberhard Karls Universität of Tübingen
Medizinische Klinik II
Ottfried Müller Str. 10
72076 Tübingen
Phone: +49 07071/298 4477
Fax: +49 07071/298 3675
Prof. Dr. Wolfgang Siegert
Abteilung Hämatologie und Onkologie
Virchow-Klinikum der Humboldt-Universität zu Berlin
Augustenburger Platz 1
13353 Berlin
Phone: +49 030/450 53673
Fax: +49 030/450 53925
Prof. Dr Hans Schmoll
Martin Luther Universität Halle Wittenberg
Kinik für Innere Medizin
Abteilung Hämatologie und Onkologie
Ernst Große Str.40
06120 Halle/Saale
Phone: +49 0345/557 2924
Fax: +49 0345/557 4959
PD Dr HG Derigs
Arbeitsgemeinschaft Internistische Onkologie
III.Medizinische Klinik
Klinikum der Johannes Gutenberg Universität
Langenbeckstr.1
55128 Mainz
Phone: +49 06131/17 2710
Fax: +49 06131/17 6647
Prof.Dr. Jörg Pont
Department of Medical Oncology
Kaiser Franz Josef Spital
Kundratstrasse 3
A-1100 Vienna
Phone: 0043-1-60191-2312
Fax: 0043-1-60191-2309
Dr Steen Hansen
Department of Oncology, Finsen Institute
Rigshospitalet, Copenhagen, Denmark
Dr Giorgio Pizzocaro, M.D.
Director, Division of Urology
Istituto Nazionale Tumori, Milan, Italy
Phone: +39 02 70125878
Dr Joseph McKendrick
Director of Medical Oncology
Department of Clinical Haematology & Medical Oncology
Box Hill Hospital
Nelson Road, Box Hill 3128
Victoria, Australia
Phone: +61 3 895 3585 (?)
Fax: +61 3 9895 3141
Prof John Levi
Clinical Professor and Director - Medical Oncology
Royal Prince Alfred Hospital
Camperdown, Sydney, NSW, Australia
E25 - Royal North Shore Hospital
The University of Sydney, NSW 2006 Australia
Phone: +61 2 9926 7448
Mobile: +61 18 243224
Fax: +61 2 9906 4150
Dr Michael Boyer
Clinical Senior Lecturer - Medical Oncology
Royal Prince Alfred Hospital
Camperdown, Sydney, NSW, Australia
Clinical Senior Lecturer
C39 - Royal Prince Alfred Hospital
The University of Sydney, NSW 2006 Australia
Phone: +61 2 9515 6123
Fax: +61 2 9519 1546
Dr Peter Nash
Urology
Urology Sydney
Level 1
St. George Medical Centre
1 South St.
Kogarah, NSW 2217 Australia
Phone: 61 2 9587 4888
Fax: 61 2 9587 4899
Dr Bill Lynch
Urology
Urology Sydney
Level 1
St. George Medical Centre
1 South St.
Kogarah, NSW 2217 Australia
Phone: 61 2 9588 2981
Fax: 61 2 9588 2614